Other Disorders

Table 6. HTC Population Profile Patient Characteristics, Other Disorders, Data Reported from 1/1/2012 through 3/31/2022

HTC Population Profile Patient Characteristics, Other Disorders
Venous thromboembolism Blood coagulation
disorder without specific
diagnosis
Ehlers-Danlos syndrome
# (%) # (%) # (%)
# of patients 39257 (100) 2380 (100) 467 (100)
Age (years) <2 3132 (8) 113 (5) * *
2–10 2908 (7) 548 (23) 55 (12)
11–19 6079 (15) 755 (32) 189 (40)
20–44 9916 (25) 509 (21) 166 (36)
45–64 10425 (27) 263 (11) 49 (10)
65+ 6797 (17) 192 (8) * *
Sex Male 17416 (44) 767 (32) 99 (21)
Female 21841 (56) 1613 (68) 368 (79)
Ethnicity Hispanic, Latino/a, or Spanish origin 3454 (9) 559 (23) 21 (4)
Not Hispanic, Latino/a, or Spanish origin 34005 (87) 1699 (71) 423 (91)
Unknown 1798 (5) 122 (5) 23 (5)
Race American Indian/Alaska Native 185 (0) 37 (2) * *
Asian 735 (2) 68 (3) * *
Black or African American 6934 (18) 224 (9) 12 (3)
Native Hawaiian or other Pacific Islander 90 (0) 8 (0) * *
White 28901 (74) 1853 (78) 421 (90)
More than one of these 235 (1) 30 (1) * *
Unknown 2177 (6) 160 (7) 26 (6)
Insurance Status Insured 38567 (98) 2336 (98) 463 (99)
Uninsured 499 (1) 19 (1) * *
Unknown 191 (0) 25 (1) * *
History of HCV infection Yes * * 25 (1) * *
No * * 1880 (79) 317 (68)
Unknown * * 475 (20) * *
Not Applicable 39257 (100) 0 (0) 0 (0)
History of HIV infection Yes * * 18 (1) * *
No * * 1887 (79) 317 (68)
Unknown * * 475 (20) * *
Not Applicable 39257 (100) 0 (0) 0 (0)

The HTC Population Profile contains 47 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently. On August 10, 2020, the responses for this question changed such that “Male to Female” (i.e., transsexual) and “Female to Male” were removed and “Intersex” was added. The number of intersex patients is too small to report by year or other characteristics; therefore, these counts have been excluded to protect patient confidentiality.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.

HCV and HIV status are not recorded for VTE patients.