von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported from 1/1/2012 through 3/31/2022

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=29408)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 22872 (100) 3236 (100) 489 (100) 2811 (100)
Age (years) <2 212 (1) 50 (2) * * 64 (2)
2–10 4259 (19) 556 (17) 69 (14) 633 (23)
11–19 9609 (42) 899 (28) 80 (16) 989 (35)
20–44 6366 (28) 970 (30) 207 (42) 693 (25)
45–64 1711 (7) 438 (14) 90 (18) 259 (9)
65+ 715 (3) 323 (10) * * 173 (6)
Sex Male 7507 (33) 1330 (41) 238 (49) 905 (32)
Female 15365 (67) 1906 (59) 251 (51) 1906 (68)
Ethnicity Hispanic, Latino/a, or Spanish origin 3914 (17) 462 (14) 46 (9) 525 (19)
Not Hispanic, Latino/a, or Spanish origin 18439 (81) 2697 (83) 433 (89) 2081 (74)
Unknown 519 (2) 77 (2) 10 (2) 205 (7)
Race American Indian/Alaska Native 141 (1) 25 (1) 6 (1) 23 (1)
Asian 572 (3) 99 (3) 35 (7) 66 (2)
Black or African American 1599 (7) 292 (9) 44 (9) 223 (8)
Native Hawaiian or other Pacific Islander 82 (0) 12 (0) * * 6 (0)
White 18999 (83) 2598 (80) 384 (79) 2127 (76)
More than one of these 219 (1) 40 (1) * * 46 (2)
Unknown 1260 (6) 170 (5) 13 (3) 320 (11)
Insurance Status Insured 22277 (97) 2986 (92) 477 (98) 2677 (95)
Uninsured 311 (1) 185 (6) * * 41 (1)
Unknown 284 (1) 65 (2) * * 93 (3)
History of HCV infection Yes 157 (1) 110 (3) 96 (20) 20 (1)
No 17284 (76) 2541 (79) 360 (74) 1886 (67)
Unknown 5431 (24) 585 (18) 33 (7) 905 (32)
History of HIV infection Yes 61 (0) 11 (0) 7 (1) 7 (0)
No 17260 (75) 2624 (81) 443 (91) 1905 (68)
Unknown 5551 (24) 601 (19) 39 (8) 899 (32)

The HTC Population Profile contains 47 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently. On August 10, 2020, the responses for this question changed such that “Male to Female” (i.e., transsexual) and “Female to Male” were removed and “Intersex” was added. The number of intersex patients is too small to report by year or other characteristics; therefore, these counts have been excluded to protect patient confidentiality.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.