von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported from 1/1/2012 through 9/29/2021

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=27687)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 21512 (100) 3089 (100) 473 (100) 2613 (100)
Age (years) <2 211 (1) 48 (2) * * 63 (2)
2-10 4082 (19) 545 (18) 64 (14) 583 (22)
11-19 9032 (42) 863 (28) 86 (18) 935 (36)
20-44 5898 (27) 918 (30) 191 (40) 633 (24)
45-64 1617 (8) 416 (13) 92 (19) 234 (9)
65+ 672 (3) 299 (10) * * 165 (6)
Sex Male 7127 (33) 1272 (41) 235 (50) 843 (32)
Female 14385 (67) 1817 (59) 238 (50) 1770 (68)
Ethnicity Hispanic, Latino/a, or Spanish origin 3636 (17) 427 (14) 42 (9) 469 (18)
Not Hispanic, Latino/a, or Spanish origin 17397 (81) 2592 (84) 421 (89) 1954 (75)
Unknown 479 (2) 70 (2) 10 (2) 190 (7)
Race American Indian/Alaska Native 132 (1) 25 (1) 7 (1) 18 (1)
Asian 529 (2) 91 (3) 31 (7) 59 (2)
Black or African American 1486 (7) 275 (9) 42 (9) 217 (8)
Native Hawaiian or other Pacific Islander 75 (0) 12 (0) * * 6 (0)
White 17969 (84) 2495 (81) 372 (79) 1985 (76)
More than one of these 202 (1) 36 (1) * * 39 (1)
Unknown 1119 (5) 155 (5) 15 (3) 289 (11)
Insurance Status Insured 20956 (97) 2837 (92) 464 (98) 2489 (95)
Uninsured 291 (1) 177 (6) * * 39 (1)
Unknown 265 (1) 75 (2) * * 85 (3)
History of HCV infection Yes 157 (1) 105 (3) 94 (20) 17 (1)
No 16043 (75) 2408 (78) 343 (73) 1723 (66)
Unknown 5312 (25) 576 (19) 36 (8) 873 (33)
History of HIV infection Yes 61 (0) 10 (0) 7 (1) 8 (0)
No 16022 (74) 2487 (81) 426 (90) 1738 (67)
Unknown 5429 (25) 592 (19) 40 (8) 867 (33)

On August 10, 2020, “intersex” was added as a response option. The number of intersex patients is too small to report by year or other characteristics; therefore, these counts have been excluded to protect patient confidentiality.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.