Other Disorders

Table 6. HTC Population Profile Patient Characteristics, Other Disorders, data reported from 1/1/2012 through 3/31/2021

HTC Population Profile Patient Characteristics, Other Disorders
Venous thromboembolism Blood coagulation
disorder without specific
diagnosis
Ehlers-Danlos syndrome
# (%) # (%) # (%)
# of patients 34706 (100) 2099 (100) 395 (100)
Age (years) <2 2779 (8) 103 (5) * *
2-10 2619 (8) 517 (25) 53 (13)
11-19 5316 (15) 662 (32) 164 (42)
20-44 8841 (25) 424 (20) 130 (33)
45-64 9292 (27) 223 (11) 42 (11)
65+ 5859 (17) 170 (8) * *
Sex Male 15355 (44) 703 (33) 89 (23)
Female 19351 (56) 1396 (67) 306 (77)
Ethnicity Hispanic, Latino/a, or Spanish origin 3023 (9) 515 (25) 17 (4)
Not Hispanic, Latino/a, or Spanish origin 30238 (87) 1484 (71) 356 (90)
Unknown 1445 (4) 100 (5) 22 (6)
Race American Indian/Alaska Native 149 (0) 32 (2) * *
Asian 620 (2) 62 (3) * *
Black or African American 6016 (17) 193 (9) 7 (2)
Native Hawaiian or other Pacific Islander 67 (0) 8 (0) * *
White 25920 (75) 1630 (78) 356 (90)
More than one of these 193 (1) 22 (1) * *
Unknown 1741 (5) 152 (7) 26 (7)
Insurance Status Insured 34049 (98) 2061 (98) 392 (99)
Uninsured 471 (1) 17 (1) * *
Unknown 186 (1) 21 (1) * *
History of HCV infection Yes * * 27 (1) * *
No * * 1594 (76) 257 (65)
Unknown * * 478 (23) * *
Not Applicable 34706 (100) 0 (0) 0 (0)
History of HIV infection Yes * * 18 (1) * *
No * * 1613 (77) 257 (65)
Unknown * * 468 (22) * *
Not Applicable 34706 (100) 0 (0) 0 (0)

The HTC Population Profile contains 51 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently. On August 10, 2020, the responses for this question changed such that “Male to Female” (i.e., transsexual) and “Female to Male” were removed and “Intersex” was added. The number of intersex patients is too small to report by year or other characteristics; therefore, these counts have been suppressed to protect patient confidentiality.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.

HCV and HIV status are not recorded for VTE patients.