von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported From 1/1/2012 through 3/31/2021

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=26543)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 20684 (100) 2976 (100) 469 (100) 2414 (100)
Age (years) <2 199 (1) 51 (2) * * 62 (3)
2-10 4029 (19) 524 (18) 67 (14) 557 (23)
11-19 8718 (42) 831 (28) 87 (19) 855 (35)
20-44 5548 (27) 885 (30) 184 (39) 569 (24)
45-64 1555 (8) 398 (13) 91 (19) 219 (9)
65+ 635 (3) 287 (10) * * 152 (6)
Sex Male 6920 (33) 1228 (41) 233 (50) 798 (33)
Female 13764 (67) 1748 (59) 236 (50) 1616 (67)
Ethnicity Hispanic, Latino/a, or Spanish origin 3513 (17) 406 (14) 42 (9) 434 (18)
Not Hispanic, Latino/a, or Spanish origin 16707 (81) 2508 (84) 419 (89) 1819 (75)
Unknown 464 (2) 62 (2) 8 (2) 161 (7)
Race American Indian/Alaska Native 129 (1) 25 (1) 6 (1) 17 (1)
Asian 509 (2) 88 (3) 31 (7) 54 (2)
Black or African American 1430 (7) 267 (9) 42 (9) 197 (8)
Native Hawaiian or other Pacific Islander 74 (0) 12 (0) * * 6 (0)
White 17303 (84) 2420 (81) 368 (78) 1856 (77)
More than one of these 192 (1) 31 (1) * * 32 (1)
Unknown 1047 (5) 133 (4) 16 (3) 252 (10)
Insurance Status Insured 20169 (98) 2740 (92) 457 (97) 2316 (96)
Uninsured 287 (1) 171 (6) * * 41 (2)
Unknown 228 (1) 65 (2) * * 57 (2)
History of HCV infection Yes 148 (1) 105 (4) 93 (20) 16 (1)
No 15162 (73) 2306 (77) 340 (72) 1581 (65)
Unknown 5374 (26) 565 (19) 36 (8) 817 (34)
History of HIV infection Yes 56 (0) 10 (0) 7 (1) 8 (0)
No 15142 (73) 2387 (80) 422 (90) 1595 (66)
Unknown 5486 (27) 579 (19) 40 (9) 811 (34)

The HTC Population Profile contains 51 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently. On August 10, 2020, the responses for this question changed such that “Male to Female” (i.e., transsexual) and “Female to Male” were removed and “Intersex” was added. The number of intersex patients is too small to report by year or other characteristics; therefore, these counts have been suppressed to protect patient confidentiality.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.