Other Disorders

Table 6. HTC Population Profile Patient Characteristics, Other Disorders, Data Reported From 1/1/2012 through 9/29/2020

HTC Population Profile Patient Characteristics, Other Disorders
Venous thromboembolism Blood coagulation
disorder without specific
diagnosis
Ehlers-Danlos syndrome
# (%) # (%) # (%)
# of patients 31950 (100) 1973 (100) 363 (100)
Age (years) <2 2512 (8) 97 (5) * *
2-10 2417 (8) 496 (25) 50 (14)
11-19 4876 (15) 629 (32) 151 (42)
20-44 8148 (26) 386 (20) 116 (32)
45-64 8655 (27) 206 (10) 41 (11)
65+ 5342 (17) 159 (8) * *
Sex Male 14092 (44) 667 (34) 81 (22)
Female 17858 (56) 1306 (66) 282 (78)
Ethnicity Hispanic, Latino/a, or Spanish origin 2761 (9) 501 (25) 14 (4)
Not Hispanic, Latino/a, or Spanish origin 28005 (88) 1378 (70) 329 (91)
Unknown 1184 (4) 94 (5) 20 (6)
Race American Indian/Alaska Native 137 (0) 31 (2) * *
Asian 569 (2) 62 (3) * *
Black or African American 5464 (17) 171 (9) 7 (2)
Native Hawaiian or other Pacific Islander 65 (0) 9 (0) * *
White 24064 (75) 1535 (78) 329 (91)
More than one of these 178 (1) 19 (1) * *
Unknown 1473 (5) 146 (7) 21 (6)
Insurance Status Insured 31307 (98) 1935 (98) 360 (99)
Uninsured 452 (1) 15 (1) * *
Unknown 191 (1) 23 (1) * *
History of HCV infection Yes * * 25 (1) * *
No * * 1487 (75) 236 (65)
Unknown * * 461 (23) * *
Not Applicable 31950 (100) 0 (0) 0 (0)
History of HIV infection Yes * * 15 (1) * *
No * * 1508 (76) 235 (65)
Unknown * * 450 (23) * *
Not Applicable 31950 (100) 0 (0) 0 (0)

The HTC Population Profile contains 62 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.

HCV and HIV status are not recorded for VTE patients.