von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported From 1/1/2012 through 9/29/2020

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=25073)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 19572 (100) 2832 (100) 462 (100) 2207 (100)
Age (years) <2 175 (1) 46 (2) * * 49 (2)
2-10 3855 (20) 498 (18) 66 (14) 529 (24)
11-19 8271 (42) 815 (29) 88 (19) 775 (35)
20-44 5178 (26) 822 (29) 179 (39) 512 (23)
45-64 1496 (8) 381 (13) 90 (19) 206 (9)
65+ 597 (3) 270 (10) * * 136 (6)
Sex Male 6570 (34) 1181 (42) 232 (50) 729 (33)
Female 13002 (66) 1651 (58) 230 (50) 1478 (67)
Ethnicity Hispanic, Latino/a, or Spanish origin 3299 (17) 376 (13) 40 (9) 389 (18)
Not Hispanic, Latino/a, or Spanish origin 15849 (81) 2397 (85) 415 (90) 1685 (76)
Unknown 424 (2) 59 (2) 7 (2) 133 (6)
Race American Indian/Alaska Native 125 (1) 24 (1) 6 (1) 14 (1)
Asian 478 (2) 85 (3) 31 (7) 51 (2)
Black or African American 1353 (7) 247 (9) 40 (9) 178 (8)
Native Hawaiian or other Pacific Islander 66 (0) 12 (0) * * 7 (0)
White 16427 (84) 2321 (82) 365 (79) 1719 (78)
More than one of these 186 (1) 30 (1) * * 30 (1)
Unknown 937 (5) 113 (4) 14 (3) 208 (9)
Insurance Status Insured 19083 (98) 2599 (92) 449 (97) 2117 (96)
Uninsured 273 (1) 168 (6) 6 (1) 43 (2)
Unknown 216 (1) 65 (2) 7 (2) 47 (2)
History of HCV infection Yes 140 (1) 103 (4) 96 (21) 17 (1)
No 14239 (73) 2180 (77) 333 (72) 1427 (65)
Unknown 5193 (27) 549 (19) 33 (7) 763 (35)
History of HIV infection Yes 53 (0) 9 (0) 7 (2) 7 (0)
No 14217 (73) 2262 (80) 417 (90) 1442 (65)
Unknown 5302 (27) 561 (20) 38 (8) 758 (34)

The HTC Population Profile contains 62 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.