Other Disorders

Table 6. HTC Population Profile Patient Characteristics, Other Disorders, Data Reported From 1/1/2012 Through 3/31/2020

HTC Population Profile Patient Characteristics, Other Disorders
Venous thromboembolism Blood coagulation
disorder without specific
diagnosis
Ehlers-Danlos syndrome
# (%) # (%) # (%)
# of patients 30424 (100) 1900 (100) 344 (100)
Age (years) <2 2401 (8) 98 (5) * *
2-10 2296 (8) 490 (26) 49 (14)
11-19 4710 (15) 605 (32) 149 (43)
20-44 7758 (25) 361 (19) 103 (30)
45-64 8250 (27) 198 (10) * *
65+ 5009 (16) 148 (8) * *
Sex Male 13423 (44) 648 (34) 73 (21)
Female 17001 (56) 1252 (66) 271 (79)
Ethnicity Hispanic, Latino/a, or Spanish origin 2639 (9) 497 (26) 14 (4)
Not Hispanic, Latino/a, or Spanish origin 26744 (88) 1318 (69) 312 (91)
Unknown 1041 (3) 85 (4) 18 (5)
Race American Indian/Alaska Native 128 (0) 31 (2) * *
Asian 545 (2) 57 (3) * *
Black or African American 5155 (17) 160 (8) 7 (2)
Native Hawaiian or other Pacific Islander 64 (0) 9 (0) * *
White 23050 (76) 1482 (78) 312 (91)
More than one of these 172 (1) 17 (1) * *
Unknown 1310 (4) 144 (8) 20 (6)
Insurance Status Insured 29824 (98) 1862 (98) 340 (99)
Uninsured 417 (1) 15 (1) * *
Unknown 183 (1) 23 (1) * *
History of HCV infection Yes * * 21 (1) * *
No * * 1444 (76) 220 (64)
Unknown * * 435 (23) * *
Not Applicable 30424 (100) 0 (0) 0 0
History of HIV infection Yes * * 13 (1) * *
No * * 1461 (77) 220 (64)
Unknown * * 426 (22) * *
Not Applicable 30424 (100) 0 (0) 0 (0)

† The HTC Population Profile contains 62 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.

‡ HCV and HIV status are not recorded for VTE patients.