Other Disorders

Table 6. HTC Population Profile Patient Characteristics, Other Disorders, Data Reported From 1/1/2012 Through 9/29/2019

HTC Population Profile Patient Characteristics, Other Disorders
Venous
thromboembolism
Blood coagulation
disorder without
specific diagnosis
Ehlers-Danlos
syndrome
# (%) # (%) # (%)
# of patients 28030 (100) 1687 (100) 302 (100)
Age (years) <2 2189 (8) 92 (5) * *
2-10 2121 (8) 445 (26) 45 (15)
11-19 4329 (15) 527 (31) 130 (43)
20-44 7199 (26) 313 (19) 89 (29)
45-64 7646 (27) 177 (10) * *
65+ 4546 (16) 133 (8) * *
Sex Male 12342 (44) 584 (35) 65 (22)
Female 15688 (56) 1103 (65) 237 (78)
Ethnicity Hispanic, Latino/a, or Spanish origin 2384 (9) 451 (27) 11 (4)
Not Hispanic, Latino/a, or Spanish origin 24734 (88) 1163 (69) 276 (91)
Unknown 912 (3) 73 (4) 15 (5)
Race American Indian/Alaska Native 118 (0) 31 (2) * *
Asian 496 (2) 51 (3) * *
Black or African American 4680 (17) 135 (8) 7 (2)
Native Hawaiian or other Pacific Islander 61 (0) 8 (0) * *
White 21369 (76) 1327 (79) 276 (91)
More than one of these 161 (1) 16 (1) * *
Unknown 1145 (4) 119 (7) * *
Insurance Status Insured 27473 (98) 1652 (98) 299 (99)
Uninsured 378 (1) 13 (1) * *
Unknown 179 (1) 22 (1) * *
History of HCV infection Yes * * 21 (1) * *
No * * 1289 (76) 185 (61)
Unknown * * 377 (22) * *
Not Applicable 28030 (100) 0 (0) 0 0
History of HIV infection Yes * * 12 (1) * *
No * * 1303 (77) 185 (61)
Unknown * * 372 (22) * *
Not Applicable 28030 (100) 0 (0) 0 (0)

† The HTC Population Profile contains 52 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.

‡ HCV and HIV status are not recorded for VTE patients.