von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported From 1/1/2012 Through 9/29/2019

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=22757)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 17761 (100) 2619 (100) 444 (100) 1933 (100)
Age (years) <2 153 (1) 41 (2) 6 (1) 38 (2)
2-10 3616 (20) 488 (19) 74 (17) 464 (24)
11-19 7486 (42) 770 (29) 79 (18) 674 (35)
20-44 4578 (26) 729 (28) 172 (39) 442 (23)
45-64 1392 (8) 353 (13) 85 (19) 191 (10)
65+ 536 (3) 238 (9) 28 (6) 124 (6)
Sex Male 6050 (34) 1100 (42) 221 (50) 642 (33)
Female 11711 (66) 1519 (58) 223 (50) 1291 (67)
Ethnicity Hispanic, Latino/a, or Spanish origin 2952 (17) 346 (13) * * 338 (17)
Not Hispanic, Latino/a, or Spanish origin 14491 (82) 2220 (85) 403 (91) 1486 (77)
Unknown 318 (2) 53 (2) * * 109 (6)
Race American Indian/Alaska Native 108 (1) 20 (1) 6 (1) 14 (1)
Asian 433 (2) 74 (3) 29 (7) 46 (2)
Black or African American 1236 (7) 228 (9) 35 (8) 164 (8)
Native Hawaiian or other Pacific Islander 61 (0) 12 (0) * * 7 (0)
White 15014 (85) 2158 (82) 359 (81) 1514 (78)
More than one of these 172 (1) 28 (1) * * 24 (1)
Unknown 737 (4) 99 (4) 8 (2) 164 (8)
Insurance Status Insured 17354 (98) 2409 (92) 429 (97) 1874 (97)
Uninsured 262 (1) 156 (6) 9 (2) 36 (2)
Unknown 145 (1) 54 (2) 6 (1) 23 (1)
History of HCV infection Yes 136 (1) 97 (4) 95 (21) 16 (1)
No 12913 (73) 2022 (77) 319 (72) 1253 (65)
Unknown 4712 (27) 500 (19) 30 (7) 664 (34)
History of HIV infection Yes 52 (0) 8 (0) 7 (2) * *
No 12885 (73) 2102 (80) 406 (91) 1269 (66)
Unknown 4824 (27) 509 (19) 31 (7) * *

† The HTC Population Profile contains 52 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.