Other Disorders

Table 6. HTC Population Profile Patient Characteristics, Other Disorders, Data Reported From 1/1/2012 Through 3/31/2019

HTC Population Profile Patient Characteristics, Other Disorders
Venous
thromboembolism
Blood coagulation
disorder without
specific diagnosis
Ehlers-Danlos
syndrome
# (%) # (%) # (%)
# of patients 25941 (100) 1558 (100) 274 (100)
Age (years) <2 2036 (8) 85 (5) * *
2-10 1968 (8) 442 (28) 44 (16)
11-19 4007 (15) 483 (31) 114 (42)
20-44 6733 (26) 281 (18) 82 (30)
45-64 7090 (27) 163 (10) 31 (11)
65+ 4107 (16) 104 (7) * *
Sex Male 11417 (44) 550 (35) 62 (23)
Female 14524 (56) 1008 (65) 212 (77)
Ethnicity Hispanic, Latino/a, or Spanish origin 2192 (8) 415 (27) 11 (4)
Not Hispanic, Latino/a, or Spanish origin 22963 (89) 1078 (69) 247 (90)
Unknown 786 (3) 65 (4) 16 (6)
Race American Indian/Alaska Native 105 (0) 30 (2) * *
Asian 458 (2) 50 (3) * *
Black or African American 4337 (17) 122 (8) 7 (3)
Native Hawaiian or other Pacific Islander 59 (0) 8 (1) * *
White 19850 (77) 1228 (79) 248 (91)
More than one of these 148 (1) 15 (1) * *
Unknown 984 (4) 105 (7) 16 (6)
Insurance Status Insured 25393 (98) 1523 (98) 272 (99)
Uninsured 354 (1) 12 (1) * *
Unknown 194 (1) 23 (1) * *
History of HCV infection Yes * * 20 (1) * *
No * * 1203 (77) 164 (60)
Unknown * * 335 (22) * *
Not Applicable 25941 (100) 0 (0) 0 (0)
History of HIV infection Yes * * 10 (1) * *
No * * 1212 (78) 165 (60)
Unknown * * 336 (22) * *
Not Applicable 25941 (100) 0 (0) 0 (0)

† The HTC Population Profile contains 44 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.

‡ HCV and HIV status are not recorded for VTE patients.