von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), data reported from 1/1/2012 through 03/31/2019

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=21561)
Type 1 Type 2 Type 3 Type other and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 16861 (100) 2504 (100) 440 (100) 1756 (100)
Age (years) <2 137 (1) 43 (2) 9 (2) 39 (2)
2-10 3489 (21) 488 (19) 72 (16) 417 (24)
11-19 7082 (42) 716 (29) 82 (19) 604 (34)
20-44 4317 (26) 696 (28) 168 (38) 410 (23)
45-64 1334 (8) 335 (13) 82 (19) 174 (10)
65+ 502 (3) 226 (9) 27 (6) 112 (6)
Sex Male 5750 (34) 1050 (42) 217 (49) 590 (34)
Female 11111 (66) 1454 (58) 223 (51) 1166 (66)
Ethnicity Hispanic, Latino/a, or Spanish origin 2780 (16) 320 (13) 35 (8) 276 (16)
Not Hispanic, Latino/a, or Spanish origin 13785 (82) 2128 (85) 397 (90) 1383 (79)
Unknown 296 (2) 56 (2) 8 (2) 97 (6)
Race American Indian/Alaska Native 105 (1) 19 (1) * * 13 (1)
Asian 409 (2) 68 (3) 27 (6) 46 (3)
Black or African American 1177 (7) 222 (9) 35 (8) 152 (9)
Native Hawaiian or other Pacific Islander 64 (0) 12 (0) * * 6 (0)
White 14291 (85) 2066 (83) 355 (81) 1384 (79)
More than one of these 161 (1) 24 (1) 7 (2) 21 (1)
Unknown 654 (4) 93 (4) 10 (2) 134 (8)
Insurance Status Insured 16478 (98) 2297 (92) 429 (98) 1703 (97)
Uninsured 244 (1) 155 (6) * * 33 (2)
Unknown 139 (1) 52 (2) * * 20 (1)
History of HCV infection Yes 137 (1) 95 (4) 95 (22) 15 (1)
No 12013 (71) 1860 (74) 312 (71) 1140 (65)
Unknown 4711 (28) 549 (22) 33 (8) 601 (34)
History of HIV infection Yes 58 (0) 10 (0) 9 (2) * *
No 11974 (71) 1938 (77) 395 (90) 1156 (66)
Unknown 4829 (29) 556 (22) 36 (8) * *

†The HTC Population Profile contains 44 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts greater than zero but less than five have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.