von Willebrand Disease (VWD)

Table 3. HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD), Data Reported From 1/1/2012 Through 9/29/2017

HTC Population Profile Patient Characteristics, von Willebrand Disease (VWD)
VWD (n=17792)
Type 1 Type 2 Type 3 Type other
and Type
unknown
# (%) # (%) # (%) # (%)
# of patients 14014 (100) 2126 (100) 399 (100) 1253 (100)
Age (years) <2 129 (1) 25 (1) * * 31 (2)
2-10 3064 (22) 462 (22) 71 (18) 304 (24)
11-19 5791 (41) 598 (28) 77 (19) 429 (34)
20-44 3467 (25) 579 (27) 150 (38) 274 (22)
45-64 1158 (8) 286 (13) 76 (19) 126 (10)
65+ 405 (3) 176 (8) * * 89 (7)
Sex Male 4865 (35) 898 (42) 194 (49) 422 (34)
Female 9149 (65) 1228 (58) 205 (51) 831 (66)
Ethnicity Hispanic, Latino/a, or Spanish origin 2268 (16) 263 (12) * * 195 (16)
Not Hispanic, Latino/a, or Spanish origin 11568 (83) 1818 (86) 361 (90) 995 (79)
Unknown 178 (1) 45 (2) * * 63 (5)
Race American Indian/Alaska Native 90 (1) 16 (1) * * * *
Asian 333 (2) 57 (3) 21 (5) 34 (3)
Black or African American 981 (7) 177 (8) 32 (8) 109 (9)
Native Hawaiian or other Pacific Islander 63 (0) 10 (0) * * * *
White 12051 (86) 1796 (84) 334 (84) 1001 (80)
More than one of these 112 (1) 17 (1) * * 13 (1)
Unknown 384 (3) 53 (2) * * 80 (6)
Insurance Status Insured 13677 (98) 1950 (92) 383 (96) 1218 (97)
Uninsured 220 (2) 135 (6) 10 (3) 19 (2)
Unknown 117 (1) 41 (2) 6 (2) 16 (1)
History of HCV infection Yes 113 (1) 87 (4) 89 (22) 16 (1)
No 9673 (69) 1521 (72) 276 (69) 833 (66)
Unknown 4228 (30) 518 (24) 34 (9) 404 (32)
History of HIV infection Yes 37 (0) 7 (0) 7 (2) * *
No 9596 (68) 1589 (75) 355 (89) 848 (68)
Unknown 4381 (31) 530 (25) 37 (9) * *

† The HTC Population Profile contains 30 transsexual individuals. For confidentiality purposes, the number of transsexual patients is too small to report by year or other characteristics. Transsexual patients have been included in the counts of male and female according to the sex assigned to them at birth since hemophilia and von Willebrand disease, the most common congenital bleeding disorders, affect the sexes differently.

* Counts of five or fewer have been suppressed to protect patient confidentiality. Additional cells may be suppressed to prevent derivation of these counts by subtraction.