Newborn Screening (NBS) Data, Virginia, 2016–2020

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The Sickle Cell Data Collection (SCDC) program monitors and reports on the health of people with sickle cell disease (SCD) over time. Data from the state’s newborn screening (NBS) program are an important part of the SCDC program because they provide information about the SCD births that occur every year. Virginia’s most recent NBS data, 2016–2020, are presented below.

The data provide the number of babies born with SCD in the state, their demographics, and their type of SCD. The people included in these data were born in Virginia during 2016–2020 and reported by the state NBS program with a confirmed diagnosis of SCD.

The individuals in the NBS data are also included in the Virginia SCDC program data for the years during which they were living in the state.

Figure 1: Annual Number of SCD Births, Virginia Newborn Screening Data, 2020
Figure 1: Annual Number of SCD Births, Virginia Newborn Screening Data, 2020

Figure 1. There were 64 SCD births in Virginia during 2020.

Figure 2: Sex, Virginia Newborn Screening Data, 2016–2020
Figure 2: Sex, Virginia Newborn Screening Data, 2016–2020

Figure 2: There were a total of 321 SCD births in Virginia during 2016–2020. There were 159 male births (50%) and 161 female births (50%).

*NOTE: The sum of all categories may be less than the total number of births if there are individuals with missing data.

Figure 3: Confirmed Type of SCD, Virginia Newborn Screening Data, 2016–2020
Figure 3: Confirmed Type of SCD, Virginia Newborn Screening Data, 2016–2020

Figure 3: Fifty-nine percent of the SCD births in Virginia during 2016–2020 were babies with hemoglobin (Hb) S/S or S/β0 thalassemia, 33% were Hb S/C, and 5% were Hb S/β+ thalassemia. The remaining babies had other or unknown types of SCD.

*NOTE: The sum of all categories may not total to 100% due to rounding errors.