California SCDC Data, 2016: Map and Figures

The SCDC program monitors and reports on the health of people with sickle cell disease (SCD) over time. The maps and figures below represent 2016 data on number of patients, hospitalizations, and emergency department (ED) visits for SCD in California (CA). Click below each map or graph to download aggregate data.

The patients included in these data met at least one of the following criteria:

  • Born in 2016 and reported by the state newborn screening program with a confirmed diagnosis of SCD
  • Born prior to 2016 and reported by the state newborn screening program with a confirmed diagnosis of SCD AND had evidence of healthcare utilization* in 2016
  • Received care at one of the state’s hemoglobinopathy specialty treatment centers AND received care 1) at the center during 2016; or 2) had evidence of healthcare utilization* during 2016 AND a laboratory-confirmed diagnosis of SCD. The specialty treatment centers included in the SCDC program are:
    • University of California San Francisco (UCSF) Benioff Children’s Hospital Oakland
    • Valley Children’s Hospital
    • UC Davis Medical Center
    • Loma Linda Medical Center
    • Sickle Cell Disease Foundation of California (community-based organization)
  • Three or more healthcare visits (hospital, emergency department, or outpatient) with an SCD ICD-9-CM (thru September 30, 2015) or ICD-10-CM (after October 1, 2015) code over any 5-year period between January 1, 2004-December 31, 2016 AND indication of healthcare utilization* 1) during 2016; or 2) before and after 2016

*hospital discharge, emergency department, or Medicaid claims

Key Terms
  • Age: the patient’s age on December 31, 2016
  • Hospital utilization: direct hospital admissions, as well as hospital admissions that originated in the ED
  • 30-day hospital readmissions: hospital or ED admission within 30 days of discharge from the initial hospital admission
  • ED visits: ED visits that resulted in a release after treatment
  • 30-day ED readmissions: hospital or ED admission within 30 days of discharge from the initial ED visit

Demographics

Map 1: Number of patients by county of residence
California SCDC Data, Patients by county

California SCDC Data, Total SCD Patients, by county
County Total Number of patients
Los Angeles 1671
San Bernardino 399
Alameda 389
Sacramento 340
Riverside 270
Contra Costa 255
San Diego 234
San Joaquin 141
Solano 140
Fresno 119
Orange 114
San Francisco 106
Kern 103
Santa Clara 51-100
Merced 21-50
Stanislaus 21-50
Ventura 21-50
San Mateo 12-20
Santa Barbara 12-20
Sonoma 12-20
Tulare 12-20
Yolo 12-20
Butte 1-11
El Dorado 1-11
Glenn 1-11
Humboldt 1-11
Imperial 1-11
Kings 1-11
Lake 1-11
Madera 1-11
Marin 1-11
Mendocino 1-11
Monterey 1-11
Napa 1-11
Placer 1-11
Plumas 1-11
San Benito 1-11
San Luis Obispo 1-11
Santa Cruz 1-11
Shasta 1-11
Siskiyou 1-11
Sutter 1-11
Tehama 1-11
Tuolumne 1-11
Yuba 1-11
All other counties 0
Figure 1: Age and sex
California SCDC Data, Age and sex

California SCDC Data, Age and sex
Age group (in years) Male Female
<10 379 353
10-19 436 419
20-29 531 570
30-39 315 477
40-49 195 358
50-59 156 294
60+ 59 147

Hospital Utilization

Figure 2: Total number of hospital admissions
California SCDC Data, Total number of hospital admissions

California SCDC Data, Total number of hospital admissions
Age group (in years) Patients, total Admissions, total
<10 732 252
10-19 855 728
20-29 1101 1955
30-39 792 1311
40-49 553 847
50-59 450 581
60+ 206 211
Figure 3: Average number of hospital admissions
California SCDC Data, Average number of hospital admissions

California SCDC Data, Average number of hospital admissions
Age group (in years) Patients, total Admissions per patient, mean
<10 732 0.34
10-19 855 0.85
20-29 1101 1.78
30-39 792 1.66
40-49 553 1.53
50-59 450 1.29
60+ 206 1.02
Figure 4: Total number of days in the hospital
California SCDC Data, Total number of days in the hospital

California SCDC Data, Total number of days in the hospital
Age group (in years) Patients, total Hospital days, total
<10 732 840
10-19 855 3721
20-29 1101 10346
30-39 792 8104
40-49 553 4890
50-59 450 2934
60+ 206 1172
Figure 5: Average number of days in the hospital
California SCDC Data, Average number of days in the hospital

California SCDC Data, Average number of days in the hospital
Age group (in years) Patients, total Total hospital days per patient, mean
<10 732 1.15
10-19 855 4.35
20-29 1101 9.40
30-39 792 10.23
40-49 553 8.84
50-59 450 6.52
60+ 206 5.69
Figure 6: Average length of stay in the hospital
California SCDC Data, Average length of stay in the hospital

California SCDC Data, Average length of stay in the hospital
Age group (in years) Admissions, total Length of stay per admission, mean
<10 252 3.33
10-19 728 5.11
20-29 1955 5.29
30-39 1311 6.18
40-49 847 5.77
50-59 581 5.05
60+ 211 5.55
Figure 7: 30-day hospital readmissions
California SCDC Data, 30-day hospital readmissions

California SCDC Data, 30-day hospital readmissions
Age group (in years) 30-day hospital readmission No readmission
<10 37% 63%
10-19 47% 53%
20-29 61% 39%
30-39 55% 45%
40-49 59% 41%
50-59 49% 51%
60+ 38% 62%
Figure 8: Hospital admissions that initiated in the ED
California SCDC Data, Hospital admissions that initiated in the ED

California SCDC Data, Hospital admissions that initiated in the ED
Age group (in years) Admissions that initiated in the ED Direct hospital admission
<10 41% 59%
10-19 61% 39%
20-29 84% 16%
30-39 83% 17%
40-49 88% 12%
50-59 84% 16%
60+ 86% 14%
Figure 9: Payer of hospital admissions
California SCDC Data, Payer of hospital admissions

Payer of hospital admissions CA
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 70% 0% 13% 1% 16%
10-19 65% 0% 18% 1% 15%
20-29 64% 14% 17% 1% 4%
30-39 46% 37% 11% 2% 3%
40-49 42% 42% 11% 2% 3%
50-59 40% 39% 19% 1% 1%
60+ 20% 70% 10% 0% 0%

ED Utilization

Figure 10: Total number of ED visits
California SCDC Data, Total number of ED visits

California SCDC Data: Total number of ED visits
Age group (in years) Patients, total ED visits, total
<10 732 509
10-19 855 894
20-29 1101 3445
30-39 792 2739
40-49 553 1871
50-59 450 1062
60+ 206 342
Figure 11: Average number of ED visits
California SCDC Data, Average number of ED visits

California SCDC Data, Average number of ED visits
Age group (in years) Patients, total ED visits per patient, mean
<10 732 0.70
10-19 855 1.05
20-29 1101 3.13
30-39 792 3.46
40-49 553 3.38
50-59 450 2.36
60+ 206 1.66
Figure 12: 30-day ED readmissions
California SCDC Data, 30-day ED readmissions

California SCDC Data, 30-day ED readmissions
Age group (in years) 30-day ED readmission No readmission
<10 18% 82%
10-19 30% 70%
20-29 54% 46%
30-39 58% 42%
40-49 57% 43%
50-59 49% 51%
60+ 45% 55%
Figure 13: Payer of ED visits
California SCDC Data, Payer of ED visits

California SCDC Data, Payer of ED visits
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 82% 0% 11% 2% 4%
10-19 68% 1% 21% 1% 9%
20-29 64% 10% 19% 4% 2%
30-39 56% 29% 11% 2% 2%
40-49 46% 32% 13% 7% 1%
50-59 40% 32% 23% 3% 2%
60+ 20% 70% 9% 1% 0%