California SCDC Data, 2015: Map and Figures

The SCDC program monitors and reports on the health of people with sickle cell disease (SCD) over time. The maps and figures below represent 2015 data on number of patients, hospitalizations, and emergency department (ED) visits for SCD in California (CA). Click below each map or graph to download aggregate data.

The patients included in these data met at least one of the following criteria:

  • Born in 2015 and reported by the state newborn screening program with a confirmed diagnosis of SCD
  • Born prior to 2015 and reported by the state newborn screening program with a confirmed diagnosis of SCD AND had evidence of healthcare utilization* in 2015
  • Received care at one of the state’s hemoglobinopathy specialty treatment centers AND received care 1) at the center during 2015; or 2) had evidence of healthcare utilization* during 2015 AND a laboratory-confirmed diagnosis of SCD. The specialty treatment centers included in the SCDC program are:
    • University of California San Francisco (UCSF) Benioff Children’s Hospital Oakland
    • Valley Children’s Hospital
    • UC Davis Medical Center
    • Loma Linda Medical Center
    • Sickle Cell Disease Foundation of California (community-based organization)
  • Three or more healthcare visits (hospital, emergency department, or outpatient) with an SCD ICD-9-CM (thru September 30, 2015) or ICD-10-CM (after October 1, 2015) code over any 5-year period between January 1, 2004-December 31, 2016 AND indication of healthcare utilization* 1) during 2015; or 2) before and after 2015

*hospital discharge, emergency department, or Medicaid claims

Key Terms
  • Age: the patient’s age on December 31, 2015
  • Hospital utilization: direct hospital admissions, as well as hospital admissions that originated in the ED
  • 30-day hospital readmissions: hospital or ED admission within 30 days of discharge from the initial hospital admission
  • ED visits: ED visits that resulted in a release after treatment
  • 30-day ED readmissions: hospital or ED admission within 30 days of discharge from the initial ED visit

Demographics

Map 1: Number of patients by county of residence
California SCDC Data, Patients by county

California SCDC Data, Total SCD Patients, by county
County Total Number of patients
Los Angeles 1743
San Bernardino 418
Alameda 411
Sacramento 344
Riverside 289
Contra Costa 255
San Diego 246
San Joaquin 149
Solano 148
Orange 119
Fresno 115
San Francisco 108
Kern 51-100
Santa Clara 51-100
Merced 21-50
San Mateo 21-50
Stanislaus 21-50
Ventura 21-50
Monterey 12-20
Santa Barbara 12-20
Sonoma 12-20
Tulare 12-20
Yolo 12-20
Butte 1-11
El Dorado 1-11
Glenn 1-11
Humboldt 1-11
Imperial 1-11
Kings 1-11
Lake 1-11
Madera 1-11
Marin 1-11
Mendocino 1-11
Napa 1-11
Placer 1-11
Plumas 1-11
San Benito 1-11
San Luis Obispo 1-11
Santa Cruz 1-11
Shasta 1-11
Siskiyou 1-11
Sutter 1-11
Tehama 1-11
Tuolumne 1-11
Yuba 1-11
All other counties 0
Figure 1: Age and sex
California SCDC Data, Age and sex

California SCDC Data, Age and sex
Age group (in years) Male Female
<10 400 372
10-19 464 435
20-29 554 613
30-39 339 500
40-49 191 360
50-59 160 292
60+ 61 145

Hospital Utilization

Figure 2: Total number of hospital admissions
California SCDC Data, Total number of hospital admissions

California SCDC Data, Total number of hospital admissions
Age group (in years) Patients, total Admissions, total
<10 772 222
10-19 899 748
20-29 1167 1912
30-39 839 1374
40-49 551 788
50-59 452 508
60+ 206 221
Figure 3: Average number of hospital admissions
California SCDC Data, Average number of hospital admissions

California SCDC Data, Average number of hospital admissions
Age group (in years) Patients, total Admissions per patient, mean
<10 772 0.29
10-19 899 0.83
20-29 1167 1.64
30-39 839 1.64
40-49 551 1.43
50-59 452 1.12
60+ 206 1.07
Figure 4: Total number of days in the hospital
California SCDC Data, Total number of days in the hospital

California SCDC Data, Total number of days in the hospital
Age group (in years) Patients, total Hospital days, total
<10 772 769
10-19 899 3965
20-29 1167 10740
30-39 839 8538
40-49 551 4858
50-59 452 3151
60+ 206 1167
Figure 5: Average number of days in the hospital
California SCDC Data, Average number of days in the hospital

California SCDC Data, Average number of days in the hospital
Age group (in years) Patients, total Total hospital days per patient, mean
<10 772 1.00
10-19 899 4.41
20-29 1167 9.20
30-39 839 10.18
40-49 551 8.82
50-59 452 6.97
60+ 206 5.67
Figure 6: Average length of stay in the hospital
California SCDC Data, Average length of stay in the hospital

California SCDC Data, Average length of stay in the hospital
Age group (in years) Admissions, total Length of stay per admission, mean
<10 222 3.46
10-19 748 5.30
20-29 1912 5.62
30-39 1374 6.21
40-49 788 6.16
50-59 508 6.20
60+ 221 5.28
Figure 7: 30-day hospital readmissions
30-day hospital readmissions

California SCDC Data, 30-day hospital readmissions
Age group (in years) 30-day hospital readmission No readmission
<10 33% 67%
10-19 47% 53%
20-29 60% 40%
30-39 57% 43%
40-49 57% 43%
50-59 51% 49%
60+ 39% 61%
Figure 8: Hospital admissions that initiated in the ED
California SCDC Data, Hospital admissions that initiated in the ED

California SCDC Data, Hospital admissions that initiated in the ED
Age group (in years) Admissions that initiated in the ED Direct hospital admission
<10 50% 50%
10-19 60% 40%
20-29 84% 16%
30-39 84% 16%
40-49 86% 14%
50-59 83% 17%
60+ 81% 19%
Figure 9: Payer of hospital admissions
California SCDC Data, Payer of hospital admissions

Payer of hospital admissions CA
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 62% 0% 15% 0% 23%
10-19 65% 0% 15% 1% 18%
20-29 64% 14% 16% 2% 3%
30-39 44% 44% 8% 2% 3%
40-49 43% 39% 16% 1% 1%
50-59 43% 41% 14% 1% 1%
60+ 26% 63% 10% 0% 0%

ED Utilization

Figure 10: Total number of ED visits
California SCDC Data, Total number of ED visits

California SCDC Data: Total number of ED visits
Age group (in years) Patients, total ED visits, total
<10 772 490
10-19 899 901
20-29 1167 3846
30-39 839 2891
40-49 551 1272
50-59 452 1024
60+ 206 297
Figure 11: Average number of ED visits
California SCDC Data, Average number of ED visits

California SCDC Data, Average number of ED visits
Age group (in years) Patients, total ED visits per patient, mean
<10 772 0.63
10-19 899 1.00
20-29 1167 3.30
30-39 839 3.45
40-49 551 2.31
50-59 452 2.27
60+ 206 1.44
Figure 12: 30-day ED readmissions
California SCDC Data, 30-day ED readmissions

California SCDC Data, 30-day ED readmissions
Age group (in years) 30-day ED readmission No readmission
<10 20% 80%
10-19 29% 71%
20-29 56% 44%
30-39 59% 41%
40-49 50% 50%
50-59 50% 50%
60+ 35% 65%
Figure 13: Payer of ED visits
California SCDC Data, Payer of ED visits

California SCDC Data, Payer of ED visits
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 78% 1% 15% 3% 3%
10-19 72% 0% 18% 2% 7%
20-29 63% 13% 17% 5% 2%
30-39 49% 33% 12% 4% 3%
40-49 48% 29% 17% 4% 1%
50-59 38% 35% 22% 1% 3%
60+ 16% 71% 11% 2% 0%
Page last reviewed: June 24, 2019