California SCDC Data, 2014: Map and Figures

The SCDC program monitors and reports on the health of people with sickle cell disease (SCD) over time. The maps and figures below represent 2014 data on number of patients, hospitalizations, and emergency department (ED) visits for SCD in California (CA). Click below each map or graph to download aggregate data.

The patients included in these data met at least one of the following criteria:

  • Born in 2014 and reported by the state newborn screening program with a confirmed diagnosis of SCD
  • Born prior to 2014 and reported by the state newborn screening program with a confirmed diagnosis of SCD AND had evidence of healthcare utilization* in 2014
  • Received care at one of the state’s hemoglobinopathy specialty treatment centers AND received care 1) at the center during 2014; or 2) had evidence of healthcare utilization* during 2014 AND a laboratory-confirmed diagnosis of SCD. The specialty treatment centers included in the SCDC program are:
    • University of California San Francisco (UCSF) Benioff Children’s Hospital Oakland
    • Valley Children’s Hospital
    • UC Davis Medical Center
    • Loma Linda Medical Center
    • Sickle Cell Disease Foundation of California (community-based organization)
  • Three or more healthcare visits (hospital, emergency department, or outpatient) with an SCD ICD-9-CM (thru September 30, 2015) or ICD-10-CM (after October 1, 2015) code over any 5-year period between January 1, 2004-December 31, 2016 AND indication of healthcare utilization* 1) during 2014; or 2) before and after 2014

*hospital discharge, emergency department, or Medicaid claims

Key Terms
  • Age: the patient’s age on December 31, 2014
  • Hospital utilization: direct hospital admissions, as well as hospital admissions that originated in the ED
  • 30-day hospital readmissions: hospital or ED admission within 30 days of discharge from the initial hospital admission
  • ED visits: ED visits that resulted in a release after treatment
  • 30-day ED readmissions: hospital or ED admission within 30 days of discharge from the initial ED visit

Demographics

Map 1: Number of patients by county of residence
California SCDC Data, Patients by county

California SCDC Data, Total SCD Patients, by county
County Total Number of patients
Los Angeles 1790
San Bernardino 435
Alameda 416
Sacramento 347
Riverside 296
Contra Costa 263
San Diego 263
Solano 145
San Joaquin 135
Orange 120
Fresno 112
San Francisco 112
Kern 105
Santa Clara 51-100
Merced 21-50
San Mateo 21-50
Stanislaus 21-50
Ventura 21-50
Monterey 12-20
Santa Barbara 12-20
Sonoma 12-20
Tulare 12-20
Yolo 12-20
Amador 1-11
Butte 1-11
El Dorado 1-11
Glenn 1-11
Humboldt 1-11
Imperial 1-11
Kings 1-11
Lake 1-11
Madera 1-11
Marin 1-11
Mendocino 1-11
Napa 1-11
Nevada 1-11
Placer 1-11
Plumas 1-11
San Benito 1-11
San Luis Obispo 1-11
Santa Cruz 1-11
Shasta 1-11
Siskiyou 1-11
Sutter 1-11
Tehama 1-11
Tuolumne 1-11
Yuba 1-11
All other counties 0
Figure 1: Age and sex
California SCDC Data, Age and sex

California SCDC Data, Age and sex
Age group (in years) Male Female
<10 430 406
10-19 468 450
20-29 556 615
30-39 343 498
40-49 195 367
50-59 165 290
60+ 63 139

Hospital Utilization

Figure 2: Total number of hospital admissions
California SCDC Data, Total number of hospital admissions
California SCDC Data, Total number of hospital admissions
Age group (in years) Patients, total Admissions, total
<10 836 267
10-19 918 692
20-29 1171 2006
30-39 841 1459
40-49 562 753
50-59 455 602
60+ 202 195
Figure 3: Average number of hospital admissions
California SCDC Data, Average number of hospital admissions

California SCDC Data – 2010, Average number of hospital admissions
Age group (in years) Patients, total Admissions per patient, mean
<10 836 0.32
10-19 918 0.75
20-29 1171 1.71
30-39 841 1.73
40-49 562 1.34
50-59 455 1.32
60+ 202 0.97
Figure 4: Total number of days in the hospital
California SCDC Data, Total number of days in the hospital

California SCDC Data – 2010, Total number of days in the hospital
Age group (in years) Patients, total Hospital days, total
<10 836 866
10-19 918 3500
20-29 1171 11088
30-39 841 8711
40-49 562 4147
50-59 455 3335
60+ 202 1064
Figure 5: Average number of days in the hospital
California SCDC Data, Average number of days in the hospital

California SCDC Data – 2010, Average number of days in the hospital
Age group (in years) Patients, total Total hospital days per patient, mean
<10 836 1.04
10-19 918 3.81
20-29 1171 9.47
30-39 841 10.36
40-49 562 7.38
50-59 455 7.33
60+ 202 5.27
Figure 6: Average length of stay in the hospital
California SCDC Data, Average length of stay in the hospital

California SCDC Data – 2010, Average length of stay in the hospital
Age group (in years) Admissions, total Length of stay per admission, mean
<10 267 3.24
10-19 692 5.06
20-29 2006 5.53
30-39 1459 5.97
40-49 753 5.51
50-59 602 5.54
60+ 195 5.46
Figure 7: 30-day hospital readmissions
California SCDC Data, 30-day hospital readmissions

Georgia SCDC Data, 30-day hospital readmissions
Age group (in years) 30-day hospital readmission No readmission
<10 34% 66%
10-19 38% 62%
20-29 60% 40%
30-39 58% 42%
40-49 58% 42%
50-59 46% 54%
60+ 38% 62%
Figure 8: Hospital admissions that initiated in the ED
California SCDC Data, Hospital admissions that initiated in the ED

California SCDC Data, Hospital admissions that initiated in the ED
Age group (in years) Admissions that initiated in the ED Direct hospital admission
<10 62% 38%
10-19 62% 38%
20-29 84% 16%
30-39 84% 16%
40-49 85% 15%
50-59 82% 18%
60+ 79% 21%
Figure 9: Payer of hospital admissions
California SCDC Data, Payer of hospital admissions

Payer of hospital admissions CA
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 69% 0% 17% 3% 12%
10-19 61% 0% 20% 3% 16%
20-29 60% 15% 18% 2% 4%
30-39 45% 42% 9% 2% 2%
40-49 43% 38% 15% 2% 1%
50-59 40% 38% 18% 1% 3%
60+ 31% 58% 10% 2% 0%

ED Utilization

Figure 10: Total number of ED visits
California SCDC Data, Total number of ED visits

California SCDC Data: Total number of ED visits
Age group (in years) Patients, total ED visits, total
<10 836 546
10-19 918 840
20-29 1171 3739
30-39 841 3185
40-49 562 1521
50-59 455 1156
60+ 202 259
Figure 11: Average number of ED visits
California SCDC Data, Average number of ED visits

California SCDC Data, Average number of ED visits
Age group (in years) Patients, total ED visits per patient, mean
<10 836 0.65
10-19 918 0.92
20-29 1171 3.19
30-39 841 3.79
40-49 562 2.71
50-59 455 2.54
60+ 202 1.28
Figure 12: 30-day ED readmissions
California SCDC Data, 30-day ED readmissions

California SCDC Data, 30-day ED readmissions
Age group (in years) 30-day ED readmission No readmission
<10 21% 79%
10-19 28% 72%
20-29 56% 44%
30-39 62% 38%
40-49 54% 46%
50-59 56% 44%
60+ 34% 66%
Figure 13: Payer of ED visits
California SCDC Data, Payer of ED visits

California SCDC Data, Payer of ED visits
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 81% 0% 12% 2% 4%
10-19 64% 1% 24% 4% 6%
20-29 61% 12% 20% 6% 2%
30-39 49% 32% 12% 6% 2%
40-49 50% 28% 15% 5% 2%
50-59 38% 36% 22% 3% 2%
60+ 29% 56% 11% 3% 0%