California SCDC Data, 2012: Map and Figures

The SCDC program monitors and reports on the health of people with sickle cell disease (SCD) over time. The maps and figures below represent 2012 data on number of patients, hospitalizations, and emergency department (ED) visits for SCD in California (CA). Click below each map or graph to download aggregate data.

The patients included in these data met at least one of the following criteria:

  • Born in 2012 and reported by the state newborn screening program with a confirmed diagnosis of SCD
  • Born prior to 2012 and reported by the state newborn screening program with a confirmed diagnosis of SCD AND had evidence of healthcare utilization* in 2012
  • Received care at one of the state’s hemoglobinopathy specialty treatment centers AND received care 1) at the center during 2012; or 2) had evidence of healthcare utilization* during 2012 AND a laboratory-confirmed diagnosis of SCD. The specialty treatment centers included in the SCDC program are:
    • University of California San Francisco (UCSF) Benioff Children’s Hospital Oakland
    • Valley Children’s Hospital
    • UC Davis Medical Center
    • Loma Linda Medical Center
    • Sickle Cell Disease Foundation of California (community-based organization)
  • Three or more healthcare visits (hospital, emergency department, or outpatient) with an SCD ICD-9-CM (thru September 30, 2015) or ICD-10-CM (after October 1, 2015) code over any 5-year period between January 1, 2004-December 31, 2016 AND indication of healthcare utilization* 1) during 2012; or 2) before and after 2012

*hospital discharge, emergency department, or Medicaid claims

Key Terms
  • Age: the patient’s age on December 31, 2012
  • Hospital utilization: direct hospital admissions, as well as hospital admissions that originated in the ED
  • 30-day hospital readmissions: hospital or ED admission within 30 days of discharge from the initial hospital admission
  • ED visits: ED visits that resulted in a release after treatment
  • 30-day ED readmissions: hospital or ED admission within 30 days of discharge from the initial ED visit

Demographics

Map 1: Number of patients by county of residence
California SCDC Data, Patients by county

California SCDC Data, Total SCD Patients, by county
County Total Number of patients
Los Angeles 1831
San Bernardino 455
Alameda 430
Sacramento 354
Riverside 291
Contra Costa 278
San Diego 269
Solano 159
San Joaquin 123
San Francisco 114
Fresno 112
Orange 103
Kern 51-100
Santa Clara 51-100
Merced 21-50
Monterey 21-50
San Mateo 21-50
Stanislaus 21-50
Ventura 21-50
Kings 12-20
Santa Barbara 12-20
Shasta 12-20
Sonoma 12-20
Tulare 12-20
Yolo 12-20
Butte 1-11
El Dorado 1-11
Glenn 1-11
Humboldt 1-11
Imperial 1-11
Lake 1-11
Lassen 1-11
Madera 1-11
Marin 1-11
Mendocino 1-11
Napa 1-11
Nevada 1-11
Placer 1-11
Plumas 1-11
San Benito 1-11
San Luis Obispo 1-11
Santa Cruz 1-11
Siskiyou 1-11
Sutter 1-11
Tehama 1-11
Tuolumne 1-11
Yuba 1-11
All other counties 0
Figure 1: Age and sex
California SCDC Data, Age and sex

California SCDC Data, Age and sex
Age group (in years) Male Female
<10 479 448
10-19 475 488
20-29 532 644
30-39 328 482
40-49 225 383
50-59 150 268
60+ 56 123

Hospital Utilization

Figure 2: Total number of hospital admissions
California SCDC Data, Total number of hospital admissions

California SCDC Data, Total number of hospital admissions
Age group (in years) Patients, total Admissions, total
<10 927 348
10-19 963 790
20-29 1176 2172
30-39 810 1484
40-49 608 872
50-59 418 611
60+ 179 188
Figure 3: Average number of hospital admissions
California SCDC Data, Average number of hospital admissions

California SCDC Data – 2010, Average number of hospital admissions
Age group (in years) Patients, total Admissions per patient, mean
<10 927 0.38
10-19 963 0.82
20-29 1176 1.85
30-39 810 1.83
40-49 608 1.43
50-59 418 1.46
60+ 179 1.05
Figure 4: Total number of days in the hospital
California SCDC Data, Total number of days in the hospital

California SCDC Data – 2010, Total number of days in the hospital
Age group (in years) Patients, total Hospital days, total
<10 927 1590
10-19 963 4542
20-29 1176 13487
30-39 810 8368
40-49 608 4616
50-59 418 3698
60+ 179 974
Figure 5: Average number of days in the hospital
California SCDC Data, Average number of days in the hospital

California SCDC Data – 2010, Average number of days in the hospital
Age group (in years) Patients, total Total hospital days per patient, mean
<10 927 1.72
10-19 963 4.72
20-29 1176 11.47
30-39 810 10.33
40-49 608 7.59
50-59 418 8.85
60+ 179 5.44
Figure 6: Average length of stay in the hospital
California SCDC Data, Average length of stay in the hospital

California SCDC Data – 2010, Average length of stay in the hospital
Age group (in years) Admissions, total Length of stay per admission, mean
<10 348 4.57
10-19 790 5.75
20-29 2172 6.21
30-39 1484 5.64
40-49 872 5.29
50-59 611 6.05
60+ 188 5.18
Figure 7: 30-day hospital readmissions
California SCDC Data, 30-day hospital readmissions

Georgia SCDC Data, 30-day hospital readmissions
Age group (in years) 30-day hospital readmission No readmission
<10 27% 73%
10-19 41% 59%
20-29 63% 37%
30-39 56% 44%
40-49 56% 44%
50-59 50% 50%
60+ 35% 65%
Figure 8: Hospital admissions that initiated in the ED
California SCDC Data, Hospital admissions that initiated in the ED

California SCDC Data, Hospital admissions that initiated in the ED
Age group (in years) Admissions that initiated in the ED Direct hospital admission
<10 49% 51%
10-19 65% 35%
20-29 83% 17%
30-39 84% 16%
40-49 84% 16%
50-59 80% 20%
60+ 80% 20%
Figure 9: Payer of hospital admissions
California SCDC Data, Payer of hospital admissions

Payer of hospital admissions CA
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 56% 0% 21% 0% 23%
10-19 52% 1% 23% 1% 25%
20-29 57% 15% 18% 3% 8%
30-39 45% 34% 14% 4% 4%
40-49 43% 37% 15% 3% 3%
50-59 39% 35% 20% 1% 5%
60+ 22% 69% 6% 2% 1%

ED Utilization

Figure 10: Total number of ED visits
California SCDC Data, Total number of ED visits

California SCDC Data: Total number of ED visits
Age group (in years) Patients, total ED visits, total
<10 927 516
10-19 963 802
20-29 1176 3346
30-39 810 2992
40-49 608 1543
50-59 418 936
60+ 179 296
Figure 11: Average number of ED visits
California SCDC Data, Average number of ED visits

California SCDC Data, Average number of ED visits
Age group (in years) Patients, total ED visits per patient, mean
<10 927 0.56
10-19 963 0.83
20-29 1176 2.85
30-39 810 3.69
40-49 608 2.54
50-59 418 2.24
60+ 179 1.65
Figure 12: 30-day ED readmissions
California SCDC Data, 30-day ED readmissions

California SCDC Data, 30-day ED readmissions
Age group (in years) 30-day ED readmission No readmission
<10 21% 79%
10-19 28% 72%
20-29 57% 43%
30-39 63% 37%
40-49 55% 45%
50-59 57% 43%
60+ 47% 53%
Figure 13: Payer of ED visits
California SCDC Data, Payer of ED visits
California SCDC Data, Payer of ED visits
Age group (in years) Medicaid Medicare Private insurance Self-pay Other
<10 67% 1% 18% 4% 10%
10-19 59% 0% 28% 4% 9%
20-29 53% 12% 20% 11% 5%
30-39 36% 37% 13% 11% 4%
40-49 37% 33% 17% 9% 4%
50-59 40% 29% 19% 8% 4%
60+ 23% 64% 10% 2% 1%