CDC’s Efforts to Improve the Health of People Living with Congenital Heart Defects (CHDs) Across the Years

2009
The Congenital Heart Public Health Consortium forms

2010
The Congenital Heart Futures Act passes

2011
Critical CHD added to U.S. Recommended Uniform Screening Panel

2012
CDC convenes meeting of experts to identify knowledge gaps & prioritize strategies to address gaps

2012
CDC funds 3 site pilot project to develop population-based surveillance of adolescents & adults with CHD

2015
CDC expands CHD surveillance to 5 sites and across the lifespan

2016
CDC launches CH STRONG: Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG in 3 sites

2016
CDC study finds that there are more adults than children living with CHD

2017
CDC study reports a 33% decrease in infant deaths from critical CHD in states that mandated screening

2018
The Congenital Heart Futures Reauthorization Act of 2017 passes

2018
All states and Washington, D.C. have policies for newborn screening of critical CHD

2019
CDC hosts a Facebook Live, “A Heart-To-Heart Chat: Living with a Heart Defect”

2019
CDC study estimates that 1 in 250 to 1 in 59 adolescents had a CHD noted at a medical visit

2019
CDC funds 7 sites* to conduct CHD surveillance among children, adolescents, and adults

2020
CDC funds project to increase awareness of CHD among primary care providers

2021
CDC funds 8 states to assess timing and method of CCHD detection
*CDC funded six sites in 2019 and one additional site in 2020