CDC’s Efforts to Improve the Health of People Living with Congenital Heart Defects (CHDs) Across the Years
2009
The Congenital Heart Public Health Consortium forms
2010
The Congenital Heart Futures Act passes
2011
Critical CHD added to U.S. Recommended Uniform Screening Panel
2012
CDC convenes meeting of experts to identify knowledge gaps & prioritize strategies to address gaps
2012
CDC funds 3 site pilot project to develop population-based surveillance of adolescents & adults with CHD
2015
CDC expands CHD surveillance to 5 sites and across the lifespan
2016
CDC launches CH STRONG: Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG in 3 sites
2016
CDC study finds that there are more adults than children living with CHD
2017
CDC study reports a 33% decrease in infant deaths from critical CHD in states that mandated screening
2018
The Congenital Heart Futures Reauthorization Act of 2017 passes
2018
All states and Washington, D.C. have policies for newborn screening of critical CHD
2019
CDC hosts a Facebook Live, “A Heart-To-Heart Chat: Living with a Heart Defect”
2019
CDC study estimates that 1 in 250 to 1 in 59 adolescents had a CHD noted at a medical visit
2019
CDC funds 7 sites* to conduct CHD surveillance among children, adolescents, and adults
2020
CDC funds project to increase awareness of CHD among primary care providers
2021
CDC funds 8 states to assess timing and method of CCHD detection
*CDC funded six sites in 2019 and one additional site in 2020