10 Years of CDC Improving the Health of People Living with Congenital Heart Defects (CHD)

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2009

The Congenital Heart Public Health Consortium forms

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2010

The Congenital Heart Futures Act passes

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2011

Critical CHD added to U.S. Recommended Uniform Screening Panel

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2012

CDC convenes meeting of experts to identify knowledge gaps & prioritize strategies to address gaps

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2012

CDC funds 3 site pilot project to develop population-based surveillance of adolescents & adults with CHD

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2015

CDC expands CHD surveillance to 5 sites and across the lifespan

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2016

CDC launches CH STRONG: Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG in 3 sites

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2016

CDC study finds that there are more adults than children living with CHD

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2017

CDC study reports a 33% decrease in infant deaths from critical CHD in states that mandated screening

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2018

The Congenital Heart Futures Reauthorization Act of 2017 passes

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2018

All states and Washington, D.C. have policies for newborn screening of critical CHD

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2019

CDC hosts a Facebook Live, “A Heart-To-Heart Chat: Living with a Heart Defect”

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2019

CDC study estimates that 1 in 250 to 1 in 59 adolescents are living with CHD in certain parts of the U.S.

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2019

CDC funds 6 sites to conduct CHD surveillance among children, adolescents, and adults