Pediatric Clinician: Referring Deaf or Hard of Hearing Children to Early Intervention
Early Intervention for Children who are Deaf or Hard of Hearing
Did you know you have a legal obligationexternal icon to make a referral to your state’s Early Intervention (EI)external icon program as soon as possible, but no later than seven calendar days after the child has been identified with a permanent hearing loss?
Children who are born deaf or hard of hearing (D/HH) are at risk for developmental delay because they may lack early exposure to an accessible language. However, data reported to the Centers for Disease Control and Prevention show that some D/HH children were not documented as having received early intervention services. In addition, some D/HH children may be born with other conditions that also can result in developmental delays. Referring D/HH children to early intervention as soon as possible will help ensure that they can reach their full potential. Early Intervention represents the goal of the entire Early Hearing Detection and Intervention (EHDI) process. To realize the benefits of early identification, intervention services need to be
- Targeted, and
In addition, intervention services for D/HH children need to be implemented promptly and in a family-centered manner. If a family refuses your referral to intervention services, be sure to document the parents’ decision.
EIexternal icon is a system of services available to children under the age of three who are eligible and may have a developmental or language delay pdf icon[284KB, 16 pages]external icon, disability, or special health condition that is likely to lead to non-typical development. Evaluation and service coordination are provided free of charge.
If a child isn’t developing as expected in certain areas, the family may be able to receive early intervention services from the state’s lead agency that works with families and children with different developmental needs. EI services are developmental services that are
- Selected in collaboration with the parents; and
- Usually provided at no cost (some Federal or State laws provide for a system of payments by families, including a schedule of sliding fees).
EI is also known as “Part C of the Individuals with Disabilities Education Act (IDEA)”
EI servicesexternal icon may include the following:
- Audiologic servicesexternal icon
- Assistive technologyexternal icon
- Counseling/psychological services
- Family training, counseling and home visits
- Medical evaluation (for diagnostic purposes only)
- Nursing services
- Nutritional services
- Occupational therapy
- Physical therapy
- Service coordination
- Social work services
- Special instruction
- Speech/language therapy
- Sign language and cued speech services pdf icon[8.16 MB, 8 pages]external icon
- Vision services
- Transportation pdf icon[8.16 MB, 8 pages]external icon
Initial Referral and Identification
When an EI program receives a referral, information about the reason(s) for the referral and the results of any screening or assessment(s) will be collected. A service coordinator is then assigned to contact the family to
- Provide information about the program,
- Gather familiy concern and child information, and
- Determine interest in scheduling an intial visit.
Intake and Family Assessmentpdf iconexternal icon [8.16 MB, 8 pages]
A service coordinator meets with family to
- Explain the program,
- Conduct developmental screening (if appropriate),
- Determine with family whether other evaluation is needed, and
- Identify any concerns and availability of resources, and set priorities.
Child Assessmentpdf iconexternal icon [8.16 MB, 8 pages]
The EI program determines eligibility to be enrolled in the early intervention program, and coordinates with an evaluation team to determine if further evaluation is needed.
- If found eligible, the EI program will contact the family to schedule and Individual Family Service Plan (IFSP) meeting
Individual Family Service Plan (IFSP) Development
The EI program team develops and IFSP with the family that integrates the following:
- Parents; concern and priorities
- Functional and measurable outcomes for the child
- Service identification and establishment of timeline for the services
Service Delivery and Transition
The service coordinator ensures that providers are timely in delivering services specified in the IFSP. The coordinator also ensures
- Transition services are provided when child reaches 3 years of age, and
- Coordinated, smooth transition to a Local Educational Agency.
Eligibility for EI services varies from state to stateexternal icon. Each state sets their own eligibility requirements, so depending on the type and/or severity of the hearing loss, some D/HH children may not be eligible to receive Part C services.
NOTE: Refer a child diagnosed D/HH even if
- You are unclear about eligibility for a specific case, or
- The child is three (3) years of age or older.
Even if the family is found to be ineligible for services, the EI case coordinator will be able to share other resources with the family.
To locate your EI program, contact
- Provider’s legal obligation (2011 Part C regulations:§ 303.302external icon) (pg. p.60141)
- National Center on Hearing Assessment and Management pdf icon[8.16 MB, 8 pages]external icon
- Part C of the Individuals with Disabilities Education Act (IDEA)external icon
- American Speech-Language and Hearing Associationexternal icon
- The Early Childhood Technical Assistance Center
- http://ectacenter.org/topics/ifsp/ifspprocess.aspexternal icon
- https://ectacenter.org/~pdfs/topics/families/ifsp_process_chart.pdf pdf icon[20.1 KB, 1 page]external icon
Other helpful resources
Centers for Disease Control and Prevention Hearing Screening and Follow-up Survey