Emergency Preparedness Info for People with Blood Disorders

Anyone in need of emergency medical assistance should call 911 or go to your nearest hospital emergency room.

Thalassemia

Cooley’s Anemia Foundation

• Emergency Preparedness Checklist pdf icon[PDF – 1.20 MB]external icon
  It’s important that all families develop a plan of action to use in the event of an emergency situation.

Hemophilia

Centers for Disease Control and Prevention (CDC)

• Family Emergency Kit Checklist pdf icon[PDF – 1.08 MB]
  Your family may not be together at the time of a disaster so it is important to develop an emergency plan before disaster strikes.

ATHNready Disaster Preparedness

• Technology Toolsexternal icon
  Patients can receive their core health information in a report—called the ATHNready Personal Health Report—on a flash drive from their HTC.

Hemophilia Federation of America

• Be Prepared Toolkitexternal icon
  Tools intended to help you plan ahead for an emergency or disaster.

• Emergency “to go” Bag pdf icon[PDF – 69.3 KB]external icon
  It is recommended that every person with a bleeding disorder have a “to go” bag ready at all times.

National Hemophilia Foundation

• Steps For Living Emergency Preparednessexternal icon
  Find information on emergency planning, essential items to bring to the ER or hospital, wearing a medical alert ID, keeping extra supplies on hand, and emergency preparedness for college students.

• Recommendation Regarding Home Factor Supplyexternal icon
  All patients with hemophilia, regardless of whether they are on home treatment or not, need an emergency supply of factor for self- infusion or to take to the nearest emergency department or medical facility.

• If your Hemophilia Treatment Center closes because of a declared emergency or disaster, contact HANDI, the NHF’s Information Resource Center at 1-800-42-HANDI for information about other HTC locations and other emergency resources. For information during non-emergency times or regular business hours, HANDI staff members are available Monday through Friday, 9:00am to 5:30pm EST, to answer your questions. Call 1-800-42-HANDI or email handi@hemophilia.org.

Find a Treatment Center

Click on one of the following links to locate a research and treatment center:

Hemophilia

Thrombosis and Hemostasis

Thalassemia