Blood Disorders

Cooley’s Anemia Foundation

Emergency Preparedness Checklist
It’s important that all families develop a plan of action to use in the event of an emergency situation.

Centers for Disease Control and Prevention (CDC)

Family Emergency Kit Checklist
Your family may not be together at the time of a disaster so it is important to develop an emergency plan before disaster strikes.

ATHNready Disaster Preparedness

Technology Tools
Patients can receive their core health information in a report—called the ATHNready Personal Health Report—on a flash drive from their HTC.

Emergency Preparedness
Educational information for you and your family about ATHN partnerships and programs, as well as links to critical emergency resources.

Hemophilia Federation of America

Emergency Preparedness
Information on emergency preparedness and medical emergencies.

Be Prepared Toolkit
Tools intended to help you plan ahead for an emergency or disaster.

Emergency “to go” Bag
It is recommended that every person with a bleeding disorder have a “to go” bag ready at all times.

National Hemophilia Foundation

Steps For Living Emergency Preparedness
Find information on emergency planning, essential items to bring to the ER or hospital, wearing a medical alert ID, keeping extra supplies on hand, and emergency preparedness for college students.

Recommendation Regarding Home Factor Supply
All patients with hemophilia, regardless of whether they are on home treatment or not, need an emergency supply of factor for self- infusion or to take to the nearest emergency department or medical facility.

If your Hemophilia Treatment Center closes because of a declared emergency or disaster, contact HANDI, the NHF’s Information Resource Center at 1-800-42-HANDI for information about other HTC locations and other emergency resources. For information during non-emergency times or regular business hours, HANDI staff members are available Monday through Friday, 9:00am to 5:30pm EST, to answer your questions. Call 1-800-42HANDI or email handi@hemophilia.org.

Click on one of the following links to locate a research and treatment center:

Emergency Preparedness and Response for Special Groups