Emergency Preparedness Info for People with Blood Disorders

Anyone in need of emergency medical assistance should call 911 or go to your nearest hospital emergency room.

Thalassemia

Cooley’s Anemia Foundation

Hemophilia

Family Emergency Kit Checklist

Centers for Disease Control and Prevention (CDC)

ATHNready Disaster Preparedness

  • Technology ToolsExternal
    Patients can receive their core health information in a report—called the ATHNready Personal Health Report—on a flash drive from their HTC.

Hemophilia Federation of America

National Hemophilia Foundation

  • Steps For Living Emergency PreparednessExternal
    Find information on emergency planning, essential items to bring to the ER or hospital, wearing a medical alert ID, keeping extra supplies on hand, and emergency preparedness for college students.
  • Recommendation Regarding Home Factor SupplyExternal
    All patients with hemophilia, regardless of whether they are on home treatment or not, need an emergency supply of factor for self- infusion or to take to the nearest emergency department or medical facility.
  • If your Hemophilia Treatment Center closes because of a declared emergency or disaster, contact HANDI, the NHF’s Information Resource Center at 1-800-42-HANDI for information about other HTC locations and other emergency resources. For information during non-emergency times or regular business hours, HANDI staff members are available Monday through Friday, 9:00am to 5:30pm EST, to answer your questions. Call 1-800-42HANDI or email handi@hemophilia.org.

Find a Treatment Center

Click on one of the following links to locate a research and treatment center:

Hemophilia

Sickle Cell Disease

Thrombosis and Hemostasis

Thalassemia