Articles About Bleeding Disorders in Women

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Key Findings

Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs
Summary of recently published review article in the Journal of Women’s Health that provides an overview of the state of the science of bleeding disorders in women, and describes CDC activities.
(Published March 24, 2022)

Survey Findings on Young Women and Bleeding Disorders
Information about bleeding disorders among women is important for early diagnosis and treatment.
(Published October 1, 2014)

Feature Articles

Journey to Know
A 3-month program for women as well as people with the potential to menstruate who have bleeding symptom(s) to help take the step to work with a healthcare provider. It provides support on the journey to find out the medical reason(s) for bleeding symptoms.
(Published: November 30, 2022)

Bleeding Disorders in Women
Learn the signs and symptoms and read stories of women living with a bleeding disorder.
(Published: December 2, 2021)

Better You Know
As many as 1.6 million women and girls in the United States may have a bleeding disorder, and many may not know it. Don’t miss the signs. The Better You Know campaign was created to help women and girls find out if they might be at risk for a bleeding disorder.
(Published: December 7, 2020)

Women Can Have Hemophilia Too
Learn how hemophilia is passed in families and read Shellye’s inspirational story about her journey toward a diagnosis and treatment plan for hemophilia.
(Published: March 18, 2019)

Bleeding Disorders and Heavy Menstrual Bleeding

Differences in bleeding phenotype and provider interventions in post menarchal adolescents when compared to adult women with bleeding disorders and heavy menstrual bleeding.
Haemophilia. 2018 Jan; 24(1):63–9.
Srivaths LV, Zhang QC, Byams VR, Dietrich JE, James AH, Kouides PA, Kulkarni R; Hemophilia Treatment Centers Network Investigators.
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Females with FVIII and FIX deficiency have reduced joint range of motion.
American Journal of Hematology. 2014 Aug; 89(8):831–6.
Sidonio RF, Mili FD, Li T, Miller CH, Hooper WC, DeBaun MR, Soucie M; Hemophilia Treatment Centers Network.
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Evaluation of bleeding disorders in women with menorrhagia: a survey of obstetrician-gynecologists.
American Journal of Obstetrics & Gynecology. 2012 Oct; 207(4):269.e1–5.
Byams VR, Anderson BL, Grant AM, Atrash H, Schulkin J.
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Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres.
Haemophilia. 2011 Jul; 17 Suppl 1(01): 6–13.
Byams VR, Kouides PA, Kulkarni R, Baker JR, Brown DL, Gill JC, Grant AM, James AH, Konkle BA, Maahs J, Dumas MM, McAlister S, Nance D, Nugent D, Philipp CS, Soucie JM, Stang E; Haemophilia Treatment Centres Network Investigators.
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Evaluation of a screening tool for bleeding disorders in a US multisite cohort of women with menorrhagia.
American Journal of Obstetrics & Gynecology. 2011 Mar; 204(3):209.e1–7.
Philipp CS, Faiz A, Heit JA, Kouides PA, Lukes A, Stein SF, Byams V, Miller CH, Kulkarni R.
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The spectrum of haemostatic characteristics of women with unexplained menorrhagia.
Haemophilia. 2011 Jan; 17(1):e223–9.
Miller CH, Philipp CS, Stein SF, Kouides PA, Lukes AS, Heit JA, Byams VR, Dowling NF, Kulkarni R.
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Developing a public health research agenda for women with blood disorders.
Journal of Women’s Health. 2010 Jul; 19(7):1231–4.
Byams VR, Beckman MG, Grant AM, Parker CS.
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Complications associated with carrier status among people with blood disorders: a commentary.
American Journal of Preventive Medicine. 2010 Apr; 38(4 Suppl):S456–8.
Hooper WC, Miller CH, Key NS.
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Blood disorders among women: Implications for preconception care.
American Journal of Preventive Medicine. 2010 Apr; 38(4 Suppl):459–67.
Ebrahim SH, Kulkarni R, Parker C, Atrash HK.
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Multisite management study of menorrhagia with abnormal laboratory haemostasis: A prospective crossover study of intranasal desmopressin and oral tranexamic acid.
British Journal of Hematology. 2009 Apr; 145(2):212–20.
Kouides PA, Byams VR, Philipp CS, Stein SF, Heit JA, Lukes AS, Skerrette NI, Dowling NF, Evatt BL, Miller CH, Owens S, Kulkarni R.
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Development of a screening tool for identifying women with menorrhagia for hemostatic evaluation.
American Journal of Obstetrics & Gynecology. 2008 Feb; 198(2):163.e1–8.
Philipp CS, Faiz A, Dowling NF, Beckman MG, Owens S, Ayers C, Bachmann G.
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Women with bleeding disorders.
Journal of Women’s Health. 2007 Nov; 16(9):1249–51.
Byams VR.
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Age and the prevalence of bleeding disorders in women with menorrhagia.
Obstetrics and Gynecology. 2005 Jan; 105(1):61–6.
Philipp CS, Faiz A, Dowling NF, Dilley A, Michaels LA, Ayers C, Miller CH, Bachmann G, Evatt B, Saidi P.
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Trends in clinical management of women with von Willebrand disease: A survey of 75 women enrolled in haemophilia treatment centres in the United States.
Haemophilia. 2004 Mar; 10(2):158–61.
Kirtava A, Crudder S, Dilley A, Lally C, Evatt B.
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Medical, reproductive and psychosocial experiences of women diagnosed with von Willebrand’s disease receiving care in haemophilia treatment centres: A case-control study.
Haemophilia. 2003 May; 9(3):292–7.
Kirtava A, Drews C, Lally C, Dilley A, Evatt B.
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A survey of gynecologists concerning menorrhagia: Perceptions of bleeding disorders as a possible cause.
Journal of Women’s Health & Gender-Based Medicine. 2002 Jan; 11(1): 39–44.
Dilley A, Drews C, Lally C, Austin H, Barnhart E, Evatt B.
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von Willebrand disease and other inherited bleeding disorders in women with diagnosed menorrhagia.
Obstetrics and Gynecology. 2001 Apr; 97(4):630–6.
Dilley A, Drews C, Miller C, Lally C, Austin H, Ramaswamy D, Lurye D, Evatt B.
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Platelet Function Disorders

Gender, race, and diet affect platelet function tests in normal subjects, contributing to a high rate of abnormal results.
British Journal of Haemotology. 2014 Jun; 165(6):842–53.
Miller CH, Rice AS, Garrett K, Stein SF.
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Screening women with menorrhagia for underlying bleeding disorders: The utility of the platelet function analyser and bleeding time.
Haemophilia. 2005 Sep; 11(5): 497–503.
Philipp CS, Miller CH, Faiz A, Dilley A, Michaels LA, Ayers C, Bachmann G, Dowling N, Saidi P.
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Platelet functional defects in women with unexplained menorrhagia.
Journal of Thrombosis and Haemostasis. 2003 Mar; 1(3): 477–84.
Philipp CS, Dilley A, Miller CH, Evatt B, Baranwal A, Schwartz R, Bachmann G, Saidi P.
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All Articles

Search a database of articles that have been published by CDC authors within the National Center on Birth Defects and Developmental Disabilities from 1990 to thepresent.