Articles About Blood Disorders Universal Data Collection (UDC)

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Recent Articles

* These CDC scientific articles are listed in order of date published, from 2005 to present.

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The Frequency of Joint Hemorrhages and Procedures in Non-severe Hemophilia A versus B.
Blood Advances 2018; 2:2136-44.
Soucie JM, Monahan PE, Kulkarni R, Konkle BA, Mazepa MA; U.S. Hemophilia Treatment Center Network.
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Risk factors associated with invasive orthopedic interventions in males with hemophilia enrolled in the Universal Data Collection (UDC) program from 2000-2010.
Haemophilia 2018; In Press.
Tobase P, Lane H, Siddiqi A-E-A, Soucie JM, Ingram-Rich R, Ward RS, Gill J.

Relevance of Abusive Head Trauma to Intracranial Hemorrhages and Bleeding Disorders
Pediatrics 2018; 141(5).
Anderst J, Carpenter S, Presley R, Berkoff M, Wheeler A, Sidonio R, Soucie, JM..
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Prophylaxis use among males with haemophilia B in the United States. Haemophilia 2017; 23:910-7.Ullman M, Zhang QC, Grosse SD, Recht M, Soucie JM; Hemophilia Treatment Center Network Investigators.[Read articleExternal]

The effects of joint disease, inhibitors and other complications on health-related quality of life among males with severe hemophilia A in the United States.
Haemophilia 2017; 23:e287 – e293.
Soucie JM, Grosse SD, Siddiqi A-E-A, Byams V, Thierry J, Zack MM, Shapiro A, Duncan N and the Hemophilia Treatment Centers Network.
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Prophylaxis usage, bleeding rates and joint outcomes of hemophilia 1999 – 2010: a surveillance project.
Blood 2017; 129:2368-2374
Manco-Johnson MJ, Soucie JM, Gill JC.
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Complications of haemophilia in babies (first two years of life): A report from the Centers for Disease Control and Prevention Universal Data Collection System.
Haemophilia 2017; 23:207-214.
Kulkarni R, Presley RJ, Lusher JM, Shapiro AD, Gill JC, Manco-Johnson M, Koerper MA, Abshire TC, DiMichele D, Hoots WK, Mathew P, Nugent DJ, Geraghty S, Evatt BL, Soucie JM.
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Men with severe hemophilia in the United States: birth cohort analysis of a large national database. Blood. 2016; 127:3073-81.
Mazepa MA, Monahan PE, Baker JR, Riske BK, Soucie JM; US Hemophilia Treatment Center Network.
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Evaluation of von Willebrand factor phenotypes and genotypes in hemophilia A patients with and without identified F8 mutations.
Journal of Thrombosis and Haemostasis 2015; 13(6):1036-42
Boylan B, Rice AS, De Staercke C, Eyster ME, Yaish HM, Knoll CM, Miller CH, The Hemophilia Inhibitor Research Study Investigators.
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Characteristics of hemophilia patients with factor VIII inhibitors detected by prospective screening.
American Journal of Hematology 2015; 90(10):871-6.
Miller CH, Rice AS, Boylan B, Payne AB, Kelly FM, Escobar MA, Gill J, Leissinger C, Soucie MJ, the Hemophilia Inhibitor Research Study Group Investigators.
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Improving the performance of factor VIII inhibitor tests in hemophilia A.
Thrombosis Research 2015; 136(6):1047-1048.
Miller CH.
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A public health approach to the prevention of inhibitors in hemophilia.
American Journal of Preventive Medicine 2014; 47(5):669-673
Soucie JM, Miller CH, Kelly FM, Oakley M, Brown DL, Kucab P.
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Hepatitis B vaccination is effective by subcutaneous route in children with bleeding disorders: a Universal Data Collection database analysis.
Haemophilia 2015; 21(1)[January]:e39–e43 [epublished 7 Nov 2014, DOI: 10.1111/hae.12569].
Carpenter SL, Soucie JM, Presley RJ, Ragni MV, Wicklund BM, Silvey M, Davidson H and the Hemophilia Treatment Center Network Investigators.
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Impact of inhibitors on hemophilia A mortality in the United States.
Am J Hematol 2015 epublished 5Feb2015 DOI: 10.1002/ajh.23957
Walsh CE, Soucie JM, Miller CH, and the United States Hemophilia Treatment Center Network.
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Association of overweight and obesity with the use of self and home-based infusion therapy among haemophilic men.
Haemophilia 2014; 20(3)[May]:340-348 [epublished 22 Nov 2013, DOI: 10.1111/hae.12303].
Ullman M, Zhang QC, Brown D, Grant A, Soucie JM; on Behalf of the Hemophilia Treatment Center Network Investigators.
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Females with FVIII and FIX deficiency have reduced joint range of motion.
Am J Hematol 2014; 89:831–836.
Sidonio RF, Mili FD, Li T, Miller CH, Hooper WC, DeBaun MR, Soucie JM and the HTCN.
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Functional outcomes following ankle arthrodesis in males with hemophilia: analyses using the CDC’s Universal Data Collection surveillance project.
Haemophilia 2014; 20(5)[September]:709-715 [epublished 16 Mar 2014, DOI: 10.1111/hae.12398].
Lane H, Siddiqi AEA, Ingram-Rich R, Tobase P, Ward, RS, Universal Data Collection Joint Outcome Working Group and Hemophilia Treatment Center Network Study Investigators.
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Prevalent inhibitors in haemophilia B subjects enrolled in the Universal Data Collection database.
Haemophilia 2014;,20(1)[January]:25–31 [epublished 25 July 2013 DOI: 10.1111/hae.12229].
Puetz J, Soucie JM, Kempton CL, Monahan PE and Hemophilia Treatment Center Network (HTCN) Investigators.
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Severe and moderate haemophilia A and B in US females.
Haemophilia (2014), 20, e136–e143.
Di Michele DM, Gibb C, Lefkowitz JM, NI Q, Gerber LM, Ganguly A.
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Similarity in Joint Function Limitation in Type 3 Von Willebrand Disease and Moderate Haemophilia A.
Haemophilia 2013;19(4)[July]:595–601 [epublished 28 Mar 2013 DOI: 10.1111/hae.12119].
Sood S, Cuker A, Wang C, Metjian A, Chiang E, Soucie JM, Konkle B. Hemophilia Treatment Center Network (HTCN) Investigators.
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Evidence for the Transmission of Parvovirus B19 in Patients with Bleeding Disorders Treated with Plasma-derived Factor Concentrates in the Era of Nucleic Acid Test (NAT) Screening.
Transfusion 2013; 53(5)[May] 2013: 1143–1144 [epublished 24 SEP 2012 DOI: 10.1111/j.1537-2995.2012.03907.x].
Soucie JM, De Staercke C, Monahan PE, Recht M, Chitlur MB, Gruppo R, Hooper WC, Kessler C, Kulkarni R, Manco-Johnson MJ, Powell J, Pyle M, Riske B, Sabio H, Trimble S & the U.S. Hemophilia Treatment Center Network.
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Prevalence of Clinical Hip Abnormalities in Hemophilia A and B: An Analysis of the UDC Database.
Haemophilia 2013;19(3)[May]:426-431.
Kelly D, Zhang QC, Soucie JM, Manco-Johnson M, DiMichele D for the Joint Outcome Subcommittee of the Coordinating Committee for the Universal Data Collection Database and the Hemophilia Treatment Center Network Investigators.
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The Effect of Secondary Prophylaxis versus Episodic Treatment on the Range of Motion of Target Joints in Patients with Hemophilia.
British Journal of Haematology 2013;161(3)[May]:424-433.
Gupta S, Siddiqi A , Soucie JM, Manco-Johnson MJ, Kulkarni R, Lane H, Ingram-Rich R, Gill JC  of the Joint Outcomes Committee of Universal Data Collection and the Hemophilia Treatment Centers Network.
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Increased prevalence of inhibitors in Hispanic patients with severe haemophilia A enrolled in the Universal Data Collection database.
Haemophilia 2012;18(3)[May]:e260-e265.
Carpenter SL, Soucie JM, Sterner S, Presley R, Hemophilia Treatment Center Network (HTCN) Investigators.
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Associations between intracranial haemorrhage and prescribed prophylaxis in a large cohort of haemophilia patients in the United States.
British Journal of Haematology 2011;152(2):211-216.
Witmer C, Presley R, Kulkarni R, Soucie JM, Manno CS, Raffini L.
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Insurance, Home Therapy, and Prophylaxis in U.S. Youth with Severe Hemophilia.
AJPM 2011; 41:S338-S345.
Baker JR, Riske B, Voutsis M, Cutter S, Presley R.
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Physical Functioning in Boys with Hemophilia in the U.S.
AJPM 2011; 43:S360-S368.
Monahan PE, Baker JR, Riske B, Soucie JM
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Surveillance of female patients with inherited bleeding disorders in United States haemophilia treatment centres.
Haemophilia 2011;17 Suppl 1:6-13.
Byams VR, Kouides PA, Kulkarni R, Baker JR, Brown DL, Gill JC, Grant AM, James AH, Konkle BA, Maahs J, Dumas MM, McAlister S, Nance D, Nugent D, Philipp CS, Soucie JM, Stang E; Haemophilia Treatment Centres Network Investigators.
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The longitudinal effect of body adiposity on joint mobility in young males with hemophilia A.
Haemophilia 2011;17(2):196-203.
Soucie JM, Wang C, Siddiqi A, Kulkarni R, Recht M, Konkle BA, Hemophilia Treatment Center Network.
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Bleeding disorders in neonates.
Haemophilia 2010;16(S5):168–174.
Kenet G, Chan AKC, Soucie JM, Kulkarni R.
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High school completion rates among men with hemophilia.
American Journal of Preventative Medicine 2010;38(4 Suppl):S489-S494.
Drake JH, Soucie JM, Cutter SC, Forsberg AD, Baker JR, Riske B.
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Bleeding Symptoms and Laboratory Correlation in Patients with Severe von Willebrand Disease
Haemophilia; July 2009; Volume 15, Number 4, pp. 918-925(8)
Metjian AD, et al.
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Sites of Initial Bleeding Episodes, Mode of Delivery and Age of Diagnosis in Babies with Haemophilia Diagnosed Before the Age of 2 Years
Haemophilia; November 2009; Volume 15, Number 6, pp. 1281-1290(10)
Kulkarni R, et al.
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Septic Arthritis in Males with Haemophilia
Haemophilia; 2008; 14:494-503
Ashrani AA, Key NS, Soucie JM, Duffy N, Forsyth A, Geraghty S.
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Incidence of Inhibitors in a Cohort of 838 Males with Hemophilia A Previously Treated with Factor VIII Concentrates
Journal of Thrombosis and Haemostasis; 2006; 4(12):2576-2581
Kempton CL, Soucie JM, Abshire TC.
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Parvovirus B19 Transmission by High-Purity Factor VIII Concentrate
Transfusion; 2005; 45:1003-1010
Wu C, et al.
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All Articles

Search a database of articles that have been published by CDC authors within the National Center on Birth Defects and Developmental Disabilities from 1990 to present.