Select State-based Activities and Funding in North Carolina
The National Center on Birth Defects and Developmental Disabilities’ extramural program funding (based on Fiscal Year 2022).

- Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems
North Carolina Department of Health and Human Services (DD20-2006, 000081)
$150,000 - Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE): Study to Explore Early Development (SEED) 3
University of North Carolina, Chapel Hill (DD16-001, 001205)
Project ended 6/30/22 - Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
University of North Carolina, Chapel Hill (DD18-001, 001231)
$800,000 - Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
Duke University (DD19-001, 001278- Comp B)
$80,000 - Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
Duke University (DD19-001, 001276- Comp C)
$25,000 - Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
Duke University (DD19-1902, 000054)
$400,000 - The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001255 – Comp A)
$415,000 - The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001253 – Comp C)
$79,987 - The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001254 – Comp D)
$275,000 - Small Business Innovation Research Grant
Health Outcomes, Inc. (SBIR19-272, 001232)
No cost extension until 9/29/23 - Sickle Cell Data Collection Program
North Carolina Department of Health and Human Services (DD20-2003, 000015)
$333,558 - Study to Explore Early Development (SEED) Follow up Studies
University of North Carolina at Chapel Hill, (DD21-001, 001293)
$588,918 - Advancing Population-Based Surveillance of Birth Defects
North Carolina Department of Health and Human Services (DD21-2101, 000100)
$331,000