Select State-based Activities and Funding in North Carolina

The National Center on Birth Defects and Developmental Disabilities’ extramural program funding (based on Fiscal Year 2022).

North Carolina
  • Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems
    North Carolina Department of Health and Human Services (DD20-2006, 000081)
    $150,000
  • Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE): Study to Explore Early Development (SEED) 3
    University of North Carolina, Chapel Hill (DD16-001, 001205)
    Project ended 6/30/22
  • Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
    University of North Carolina, Chapel Hill (DD18-001, 001231)
    $800,000
  • Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
    Duke University (DD19-001, 001278- Comp B)
    $80,000
  • Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
    Duke University (DD19-001, 001276- Comp C)
    $25,000
  • Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
    Duke University (DD19-1902, 000054)
    $400,000
  • The Muscular Dystrophy Surveillance, Tracking and Research Network
    Research Triangle Institute (DD19-002, 001255 – Comp A)
    $415,000
  • The Muscular Dystrophy Surveillance, Tracking and Research Network
    Research Triangle Institute (DD19-002, 001253 – Comp C)
    $79,987
  • The Muscular Dystrophy Surveillance, Tracking and Research Network
    Research Triangle Institute (DD19-002, 001254 – Comp D)
    $275,000
  • Small Business Innovation Research Grant
    Health Outcomes, Inc. (SBIR19-272, 001232)
    No cost extension until 9/29/23
  • Sickle Cell Data Collection Program
    North Carolina Department of Health and Human Services (DD20-2003, 000015)
    $333,558
  • Study to Explore Early Development (SEED) Follow up Studies
    University of North Carolina at Chapel Hill, (DD21-001, 001293)
    $588,918
  • Advancing Population-Based Surveillance of Birth Defects
    North Carolina Department of Health and Human Services (DD21-2101, 000100)
    $331,000