Select State-based Activities and Funding in New York

The National Center on Birth Defects and Developmental Disabilities’ extramural program funding (based on Fiscal Year 2020).

New York

  • Documentation and Use of Follow up Diagnostic and Intervention Services Data through the Maintenance and enhancement of the Early Hearing Detection and Intervention Information System (EHDI-IS)
    Health Research Inc (DD17-1701, 000066)
    Project ended 6/30/20
  • Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems
    Health Research Inc. (DD20-2006, 000060)
    $160,000
  • Improving the Health of People with Mobility Limitations and Intellectual Disabilities thru State-based Public Health Programs
    Health Research Inc (DD16-1603, 000004)
    $440,000
  • Surveillance of Congenital Heart Defects Across the Lifespan
    Health Research Inc/New York State Department of Health (DD15-1506, 004931)
    Project ended 9/29/20
  • Public Health Surveillance for the Prevention of Complications of Bleeding Disorders
    American Thrombosis and Hemostasis Network (DD15-1507, 000001)
    No cost extension until 9/29/21
  • Public Health Surveillance for the Prevention of Complications of Bleeding Disorders
    American Thrombosis and Hemostasis Network (DD20-2004, 000020)
    $4,300,000
  • Implementing Evidence-Based Health Promotion Programs for Children with Attention-Deficit/Hyperactivity Disorder (ADHD) or Tourette Syndrome (TS)
    Tourette Syndrome Association, Inc. (DD19-1904, 000017)
    $900,000
  • Evaluation of Health Promotion and Preventive Program for Blood Disorders
    Cooley’s Anemia Foundation, Inc. (DD14-1405, 001150)
    Project ended 9/29/20
  • Evaluation of Health Promotion and Preventive Program for Blood Disorders
    Cooley’s Anemia Foundation, Inc. (DD20-2002, 000005)
    $150,000
  • Evaluation of Health Promotion and Preventive Program for Blood Disorders
    National Hemophilia Foundation (DD14-1405, 001154)
    Project ended 9/29/20
  • Evaluation of Health Promotion and Preventive Program for Blood Disorders
    National Hemophilia Foundation (DD20-2002, 000006)
    $500,000
  • Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
    New York State Psychiatric Institute (DD15-003, 001188)
    $198,173
  • Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
    Institute for Basic Research in Developmental Disabilities (DD15-003, 001189)
    Project ended 8/31/20
  • Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
    Health Research Inc/New York Department of Health (DD18-001, 001227)
    $900,000
  • Surveillance of Congenital Heart Defects Among Children, Adolescents and Adults
    New York State Department of Health (DD19-1902, 000056)
    $480,000
  • Characterizing the Complications Associated with Therapeutic Blood Transfusions for Hemoglobinopathies
    Joan & Sanford I. Weill Medical College of Cornell University (DD19-1903, 000001)
    $250,000
  • The Muscular Dystrophy Surveillance, Tracking and Research Network
    Health Research Inc/New York Department of Health (DD19-002, 001252- Comp A)
    $375,000
  • The Muscular Dystrophy Surveillance, Tracking and Research Network
    Health Research Inc/New York Department of Health (DD19-002, 001250- Comp C)
    $80,000
  • The Muscular Dystrophy Surveillance, Tracking and Research Network
    Health Research Inc/New York Department of Health (DD19-002, 001251- Comp E)
    $80,000
  • Surveillance for Emerging Threats to Mothers and Babies
    Health Research Inc.  (CK19-1904)
    $895,346
  • Surveillance for Emerging Threats to Mothers and Babies
    New York City Department of Health & Mental Hygiene (CK19-1904)
    $333,142