Helping Children Live to the Fullest by Understanding Developmental Disabilities
CDC’s National Center on Birth Defects and Developmental Disabilities (NCBDDD) is committed to helping children with developmental disabilities and their families get the support they need to thrive.
Developmental disabilities, such as autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder, cerebral palsy, hearing loss, and vision loss create delays and/or impairments in daily activities that can impact a child’s health and well-being. Approximately 1 in 6 children in the United States have developmental disabilities or other developmental delays. To best support children and their families, CDC is committed to
- Monitoring common developmental disabilities;
- Identifying factors that can put children at risk for developmental disabilities and exploring possible causes;
- Improving identification of developmental disabilities and delays; and
- Providing technical assistance to partners on how to implement programs to improve the care and quality of life for children with developmental disabilities and their caregivers.
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Early hearing screening and intervention for children with hearing loss saves approximately $200 million in additional education costs each year
Data for Action
- CDC launched the Autism Data Visualization Tool, an interactive, web-based platform that gives users the opportunity to explore data on the prevalence of ASD among children. This platform provides clear, transparent information on ASD prevalence estimates nationally and by state or site (when data are available) for years 2000 to 2017.
- The goal of the Autism Data Visualization Tool is to provide the most current ASD prevalence estimates available from CDC and other surveillance sources in order to show the most comprehensive picture of ASD among children in the United States.
- The data presented through the platform highlight changes over time in reported ASD prevalence estimates and in the characteristics of children identified with ASD.
- The information provided can help state epidemiologists, researchers, public health professionals, and everyone interested in children with ASD better understand the different methods used for tracking ASD prevalence. It also provides an easy way to access national as well as state- and community-specific information that may be of interest to public health researchers, state health officials, and members of the public.
- The data come from four different sources: CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network, Special Education, the National Survey of Children’s Health, and Medicaid.
Children with developmental disabilities, and their families, often face personal, social, and financial challenges. CDC and its partners work across systems to improve early identification of children with developmental delays, connect these children and their families to medical, developmental, and behavioral intervention services, and provide tools and resources to help families facing these challenges. NCBDDD’s mission also includes understanding optimal development at each stage of life, from promoting school readiness to the health of teens with ASD, as well as helping families and children get the support they need.
Notable Scientific Publications
- Barger B, Squires J, Greer M, Noyes-Grosser D, Martin Eile J, Rice C, Shaw EM, Surprenant KS, Twombly E, London S, Zubler J, Wolf RB. State variability in diagnosed conditions for IDEA Part C eligibilityexternal icon. Infants & Young Children. 2019;32(4):231–244.
- Christensen DL, Maenner MJ, Bilder D, Constantino JN, Daniels J, Durkin MS, Fitzgerald RT, Kurzius-Spencer M, Pettygrove SD, Robinson C, Shenouda J, White T, Zahorodny W, Pazol K, Dietz P. Prevalence and characteristics of autism spectrum disorder among children aged 4 years—Early Autism and Developmental Disabilities Monitoring Network, seven sites, United States, 2010–2014. MMWR Surveill Summ. 2019;68(2):1–19.
- Cordero C, Schieve LA, Croen LA, Engel SM, Maria Siega-Riz A, Vladutiu CJ, Seashore CJ, Daniels JL. Neonatal jaundice in association with autism spectrum disorder and developmental disorderexternal icon. J Perinatol. 2019 Aug 6. 2020;40:219–225.
- Cree RA, Bitsko RH, Robinson LR, Holbrook JR, Danielson ML, Smith C, Kaminski JW, Kenney MK, Peacock G. Health care, family, and community factors associated with mental, behavioral, and developmental disorders and poverty among children aged 2–8 years—United States, 2016. MMWR Morb Mortal Wkly Rep. 2018;67(50):1377–1383.
- Croen LA, Qian Y, Ashwood P, Zerbo O, Schendel D, Pinto-Martin J, Fallin MD, Levy S, Schieve LA, Yeargin-Allsopp M, Sabourin KR, Ames JL. Infection and fever in pregnancy and autism spectrum disorders: Findings from the Study to Explore Early Developmentexternal icon. Autism Res. 2019;12(10):1551–1561.
- Ghandour RM, Sherman LJ, Vladutiu CJ, Ali MM, Lynch SE, Bitsko RH, Blumberg SJ. Prevalence and treatment of depression, anxiety, and conduct problems in US childrenexternal icon. J Pediatr. 2019;206:256–267.e3.
- Kotzky K, Allen JE, Robinson LR, Satterfield-Nash A, Bertolli J, Smith C, Ornelas Pereira I, Faria e Silva Santelli AC, Peacock G. Depressive symptoms and care demands among primary caregivers of young children with evidence of congenital Zika virus infection in Brazilexternal icon. J Dev Behav Pediatr. 2019;40(5):344–353.
- Perou R, Robinson LR, Danielson ML, Claussen A, Visser SN, Scott KG, Beckwith L, Katz L, Smith DC. The Legacy for Children™ randomized control trial: Effects on cognition through third grade for young children experiencing povertyexternal icon. J Dev Behav Pediatr. 2019;40(4):275–284.
- Rubenstein E, Croen L, Lee LC, Moody E, Schieve LA, Soke GN, Thomas K, Wiggins L, Daniels J. Community-based service use in preschool children with autism spectrum disorder and associations with insurance statusexternal icon. Res Autism Spectr Disord. 2019;66:101410.
- Shapira SK, Tian LH, Aylsworth AS, Elias ER, Hoover-Fong JE, Meeks NJL, Souders MC, Tsai AC, Zackai EH, Alexander AA, Yeargin-Allsopp M, Schieve LA. A Novel Approach to Dysmorphology to Enhance the Phenotypic Classification of Autism Spectrum Disorder in the Study to Explore Early Developmentexternal icon. J Autism Dev Disord. 2019;49(5):2184–2202.
- Wolicki SB, Bitsko RH, Danielson ML, Holbrook JR, Zablotsky B, Walkup JT, Woods DW, Mink JW. Children with Tourette syndrome in the United States: Parent-reported diagnosis, co-occurring disorders, severity, and influence of activities on ticsexternal icon. J Dev Behav Pediatr. 2019;40(6):407–414.