Behavioral and Clinical Characteristics of Persons Living with Diagnosed HIV Infection—Medical Monitoring Project, United States, 2019 Cycle: Technical Notes

Technical Notes

Population of Inference

For the 2019 Medical Monitoring Project (MMP) data collection cycle (data collected June 1, 2019–May 31, 2020), the population of inference was adults with diagnosed HIV (aged ≥18 years) living in the United States.

A total of 23 areas were funded to conduct data collection for the 2019 cycle: California (including the separately funded jurisdictions of Los Angeles County and San Francisco), Delaware, Florida, Georgia, Illinois (including the separately funded jurisdiction of Chicago), Indiana, Michigan, Mississippi, New Jersey, New York (including the separately funded jurisdiction of New York City), North Carolina, Oregon, Pennsylvania (including the separately funded jurisdiction of Philadelphia), Puerto Rico, Texas (including the separately funded jurisdiction of Houston), Virginia, and Washington.

Data Collection

Persons with diagnosed HIV were sampled for MMP using data from the National HIV Surveillance System (NHSS). Sampled persons were recruited to participate by mail, by telephone, or in person. To be eligible for MMP, the person had to be, as of December 31, 2018: living with diagnosed HIV infection, aged ≥18 years, and residing in an MMP project area. The participant eligibility criteria were the same in all participating project areas.

A trained interviewer conducted either a telephone interview or an in-person interview. English and Spanish versions of the questionnaire were used in the 2019 cycle (June 2019–May 2020). Persons who agreed to participate were interviewed over the telephone or in a private location (e.g., at home or in a clinic). The interview (approximately 45 minutes) included questions about demographics, health care use, met and unmet needs for ancillary services, sexual behavior, depression and anxiety, gynecologic and reproductive history (females only), drug and alcohol use, and use of prevention services. Participants were given a token of appreciation of no more than $50 in cash or the equivalent for participation; tokens differed by project area according to local considerations.

After the interview, MMP staff abstracted clinical data from the medical records of participants at the health care facility identified by the participant as their most frequent source of HIV care. Abstracted information included diagnoses of AIDS-defining conditions, prescription of antiretroviral therapy (ART) medications, laboratory results, and health care use in the 24 months before the interview.

For further technical details, please see the appendix.