GAPPNet™ Stakeholder Organizations


GAPPNet stakeholder organizations may work independently on the following general activities to meet their organization’s goals, or collaboratively as part of GAPPNet.
Stakeholders Knowledge synthesis Evidence-based recommendation development Translation research Translation programs
Academia and Research Institutions
  • Conduct evidence-based reviews
  • Develop knowledge bases
  • Participate in independent panels [Evaluation of Genomic Applications in Practice and Prevention (EGAPP) and the U.S. Preventive Services Task Force (USPSTF)]
  • Join and organize research groups
  • Conduct translation research
  • Serve on translation advisory committees
  • Conduct outcomes research
Government
  • Conduct and provide funding for evidence-based reviews (federal)
  • Develop and provide funding for establishing knowledge bases (federal)
  • Generate and synthesize population-based data (federal and state)
  • Convene scientific community (federal and state)

  • Support the development of methods and processes for establishing evidence-based recommendations (federal)
  • Provide funding for the development of evidence-based recommendations (federal)

  • Provide funding for translation research (federal)
  • Create partner collaborations through funding opportunities (federal)
  • Provide funding for translation activities and interventions (federal)
  • Conduct translation activities and implement interventions (federal and state)
    • Integrate evidence-based reviews and recommendations into Medicare, Medicaid, health insurance plans, and other groups
    • Establish educational activities and support policy interventions (e.g., to promote the appropriate use of genomics applications, protect against misuse of genetic information, protect against harm due to genetic test results)
    • Generate and synthesize population-based data
    • Establish diverse partnerships and multidisciplinary advisory committees
Health Plans
  • Commission and conduct evidence-based reviews

  • Participate in independent panels [Evaluation of Genomic Applications in Practice and Prevention (EGAPP) and the U.S. Preventive Services Task Force (USPSTF)]
  • Establish reimbursement policies for the use of genomic applications based on evidence-based reviews and recommendations
  • Develop and disseminate translated educational materials (e.g., to promote the appropriate use of genomics applications, protect against misuse of genetic information, protect against harm due to genetic test results)
Industry
  • Conduct translation research
  • Develop new technologies, chips, informatics, etc.
Professional and Advisory Organizations
  • Commission and conduct evidence-based reviews (EGAPP and USPSTF)
  • Develop methods and processes for establishing evidence-based recommendations (EGAPP and USPSTF)
  • Develop evidence-based recommendations (EGAPP and USPSTF)
  • Implement genomic applications through professional engagement, continuing medical education credits, and other educational activities
  • Develop policy statements and recommendations for the use of genomics applications in clinical and public health practice
Community and Consumer Groups
  • Participate in community-driven translation research
  • Conduct translation activities and interventions
  • Advocate for policies on appropriate use of genomic applications
  • Establish diverse partnerships and multidisciplinary advisory committees
Patient Advocacy Groups
  • Provide and disseminate evidence-based materials through Web sites and other media for patients and their families
  • Host patient education seminars

The stakeholder organizations listed on this Web page participate voluntarily in GAPPNet™. Participation in GAPPNet™ does not imply any advisory relationship between these organizations and the U.S. government, nor does it imply an endorsement of the organizations.
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Page last reviewed: February 17, 2010 (archived document)