Lynch Syndrome education tools

LS Tier 1 tools and educational materials from states and other sources

Surveillance Tools/Resources

Michigan Department of Community Health Cancer Genomics Surveillance ReportExternal

Michigan Cancer Surveillance Program Cancer Report Form Cdc-pdf[PDF 105.30KB]External

Oregon Healthcare Provider Cancer Genomics Survey Cdc-pdf[PDF 240.46 KB]External

Oregon HA Cancer Genetic Insurance Questions for Insurers Cdc-pdf[PDF 129.08 KB]External

The University of Washington has compiled a series of genomics and family health history survey questions.External

Lynch Syndrome Screening Network (LSSN) EGAPP LS Recommendation Data from 91 LSSN applications Cdc-pdf[PDF 132.83 KB]External

Oregon logic model Cdc-pdf[PDF 125.35 KB]External and data sources charts Cdc-pdf[PDF 22.85 KB]External

 

Education Tools/Resources

Connecticut LS Fact Sheet Cdc-pdf[PDF 146.60 KB]External

New York State Department of Health Cancer Genetic Counseling Poster Cdc-pdf[PDF 560.28 KB]External

Michigan Department of Community Health created and copyrighted a risk assessment tool called the Cancer Family History Pocket Guide, a hand held tool for providers that assists with risk assessment and referral guidelines for patients with a family history of breast, ovarian, colorectal or endometrial cancer. The process used to develop the pocket guide is described in a poster Cdc-pdf[PDF147.49 KB]External. They have to date distributed more than 15,000 of these tools Cdc-pdf[PDF 56.41 KB]External to assist providers in identifying high risk patients for referral to a genetics specialist.

Genetic Alliance brochures on LS developed in partnership with Lynch Syndrome International with funding from OPHG: Genetic Testing and Cancer Prevention for Lynch Syndrome; Lynch Syndrome Cdc-pdf[PDF 434.09 KB]External and Talking to Family about Lynch Syndrome Cdc-pdf[PDF 332.61 KB]External.

Ohio State University Comprehensive Cancer Center Fact Sheet Cdc-pdf[PDF 107.75 KB]External

Talking Turkey about Lynch Syndrome webinar with Heather Hampel, MS, CGC, Brian Mansfield and Bill Harb, MD – November 2012External

Michigan Cancer Consortium information (includes wide range of information on Lynch syndrome)External

The Lynch Syndrome Surveillance Network:External website includes a a number of educational materials.

The American Society of Clinical Oncology has produced Basic Elements of Informed Consent for Cancer Susceptibility Testing which can be used to help develop an appropriate informed consent form.

National Library of Medicine Genetics Home ReferenceExternal information on LS.

National Cancer Institute (NCI) information on genetics of colorectal cancerExternal )

NCI Video: Collaborating for Impact: Public Health Genomics and Cancer ControlExternal

Kin TalkExternal a social networking site, developed by genetic counselors at the University of California – San Francisco for individuals and families with LS, to help families deal with the difficult questions that arise when cascade screening for LS is initiated.

Cancer.net information about sharing genetic test results with your familyExternal

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Page last reviewed: March 6, 2014