Lynch Syndrome education tools
Michigan Department of Community Health created and copyrighted a risk assessment tool called the Cancer Family History Pocket Guide, a hand held tool for providers that assists with risk assessment and referral guidelines for patients with a family history of breast, ovarian, colorectal or endometrial cancer. The process used to develop the pocket guide is described in a poster Cdc-pdf[PDF147.49 KB]External. They have to date distributed more than 15,000 of these tools Cdc-pdf[PDF 56.41 KB]External to assist providers in identifying high risk patients for referral to a genetics specialist.
Genetic Alliance brochures on LS developed in partnership with Lynch Syndrome International with funding from OPHG: Genetic Testing and Cancer Prevention for Lynch Syndrome; Lynch Syndrome Cdc-pdf[PDF 434.09 KB]External and Talking to Family about Lynch Syndrome Cdc-pdf[PDF 332.61 KB]External.
The Lynch Syndrome Surveillance Network:External website includes a a number of educational materials.
The American Society of Clinical Oncology has produced Basic Elements of Informed Consent for Cancer Susceptibility Testing which can be used to help develop an appropriate informed consent form.
National Library of Medicine Genetics Home ReferenceExternal information on LS.
Kin TalkExternal a social networking site, developed by genetic counselors at the University of California – San Francisco for individuals and families with LS, to help families deal with the difficult questions that arise when cascade screening for LS is initiated.