Hereditary Breast and Ovarian Cancer (HBOC) Tools
Tools for Bidirectional Cancer Registry Reporting to Identify Individuals at Risk for Hereditary Breast and Ovarian Cancer syndrome
The following materials were developed to support state programs using bidirectional cancer registry reporting to identify individuals at risk for Hereditary Breast and Ovarian Cancer syndrome. State health departments are encouraged to customize the materials to meet their needs. Materials are categorized by those intended for patients and for healthcare providers, but materials may be suitable for multiple audiences. Please note that some materials will need to be filled out with state-specific information, as noted below.
Information for Patients
- Hereditary Breast and Ovarian Cancer Syndrome: A Guide for Patients and Their Families [DOC 966 KB]
- Brochure on Talking to Your Family About Your Diagnosis of Hereditary Breast and Ovarian Cancer Syndrome [PPT – 302 KB]
- Sample Letter for Informing Your Family Members about Your BRCA1 or BRCA2 Mutation [DOC 26.2 KB]
- List of Cancer Genetic Specialists for Your State or Region [DOC 23KB] (Please note that state programs will need to complete this form.)
- What You Need to Know About Cancer Registries: Frequently Asked Questions for Patients and Their Families [DOC 24.9 KB]
Information for Providers
- This slide set is intended to be a resource for state health departments to use when presenting to hospitals and other institutions. [PPT 6.77 MB] States are welcome to select and modify slides to use and are not expected to use the entire set in a single presentation.
- Hereditary Breast and Ovarian Cancer Syndrome: Fact Sheet for Healthcare Professionals [DOC 34.3 KB]
- Evidence-based Practice Guidelines Supporting Genetic Susceptibility Testing for Hereditary Breast and Ovarian Cancer Syndrome [DOC 20.4 KB]
- Bidirectional cancer registry reporting to identify patients at high risk for hereditary cancer syndromes: what providers and institutions need to know. Video for educational outreach to providers and institutions in states that have bidirectional cancer registry reporting programs in place.
- Sample clinician’s letter to provide your patients to help them let their family members know about their BRCA1 or BRCA2 mutation [DOC – 20 KB]
- Sample Hospital and Medical Center Cancer Genetics Data Report on Potential Hereditary Breast and Ovarian Cancer Syndrome-Related Cancers [DOC 23.6 KB] (Please note that state programs will need to complete this form.)
CDC Medscape Expert Commentary on Genetics and BRCA in Primary Care
CDC Medscape Expert Commentary on a Tiered Approach to Integrating Genomics Into Your Practice
Video produced in partnership with CDC: Cascade Genetic Screening and Public Health Practice: An Idea Whose Time Has Come