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Consumers Home > Additional DES Resources > Partner and Government Organizations > DES Advocacy Organizations
DES Advocacy Organizations

Partner and Government Organizations

 CDC's DES Update
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DES Action USA
158 S. Stanwood Rd.
Columbus, OH 43209

Phone: (toll-free) 1-800-DES-9288
Web site:

DES Action USA is a national, non-profit consumer organization dedicated to informing the public about DES and helping DES-exposed people. This organization offers a quarterly newsletter and many publications on various aspects of DES exposure and links DES-exposed people, DES researchers, and the medical community. They provide a physician referral list for every state.

DES Cancer Network
P.O. Box 220465
Chantilly, VA 20153-0465
Phone: (toll-free) 1-800-DES-NET-4
Web site:

DES Cancer Network is an international advocacy organization that addresses the special needs of women exposed to DES who have had clear cell adenocarcinoma (CCA) of the vagina and/or cervix. This network provides a support system that gives members access to one another and to information about CCA.

DES Sons Network
Michael Freilick
104 Sleepy Hollow Place
Cherry Hill, NJ 08003

DES Sons Network is a national network providing information and support for DES Sons and counseling for men with testicular cancer. It is affiliated with DES Action USA.

DES Sons' International Network
c/o Scott Kerlin, Ph.D.
3110 Highway 38, RR1
Elginburg, Ontario, Canada KOH 1M0


Dana Beyer, M.D.
8 East Irving Street
Chevy Chase, MD 20815-4221

DES Sons' International Network is a private online professional health information and support network for DES Sons and for others with an interest in research related to DES exposure.

The DES Third Generation Network
P.O. Box 21
Mahwah, NJ 07430

The DES Third Generation Network is an advocacy network designed to collect and share information about the health of children born to DES Daughters (women exposed to DES before birth [in the womb]) and DES Sons (men exposed to DES before birth [in the womb]).

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