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References and Resources

Resources for Parents

  • Early Hearing Detection and Intervention
    Information from the National Center on Birth Defects and Developmental Disabilities, CDC.
  • Intellectual Disability [2 pages]
    Information about intellectual disabilities from CDC’s National Center on Birth Defects and Developmental Disabilities.
  • National Cytomegalovirus Registry for Pregnant WomenThe purpose of National Cytomegalovirus Registry for Pregnant Women is to develop a database of pregnant women in the United States who develop a congenital infection during pregnancy.
  • Parent-to-Parent Support Network
    The National Congenital CMV Disease Registry assists nearly 600 families affected by CMV by providing a way to exchange information and by offering help and support to one another. When you join or update your profile, we will send you the current parent list.
  • National CMV FoundationA foundation with the mission is to increase awareness of CMV, provide information to help prevent and eliminate CMV, and become an advocate for those who are affected by congenital CMV.
  • Congenital Cytomegalovirus Foundation – A non-profit organization dedicated to raising public awareness about congenital CMV.

Selected Publications