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NPCR-AERRO Central Cancer Registry Workgroup

Purpose and Goals

The Central Cancer Registry (CCR) Workgroup was formed after the Strategic Assessment and Modeling Session (SAMS) held in Atlanta, Georgia, in March 2006. Regional and state registries were the main participants.

The workgroup consisted of participants from the March and October 2006 SAMS. The purpose of the workgroup was to—

  • Develop the CCR module of the NPCR-AERRO model.
  • Create a best practice use case for each cancer registry function identified at the SAMS.
  • Review and revise the diagrams.
  • Develop guidelines and recommendations.
  • Help develop an implementation strategy.

The workgroup met regularly to further the NPCR-AERRO central cancer registry activities.

Activities and Timeline

The workgroup reviewed and revised diagrams, developed guidelines and recommendations for central registries to use electronic reporting and automation processes, and collaborated on the development of an implementation strategy for electronic reporting. Below is a list of completed products that represent workgroup activities.

CyberView: The latest versions of completed models, UML diagrams, and use case documents are available in this Web-based presentation tool that opens in a new browser window. CyberView provides a view of the models at different levels of granularity with easy drill-down navigation.


Use Case Task Status Release Date
1.1 Approve a Pathology Laboratory for Electronic Reporting Use Case Complete December 2011
1.2 Prepare and Transmit Event Report Complete August 2009
1.3 Receive Batch File Complete October 2007
1.4 Validate Event Report Complete October 2007
1.5 Perform Patient Linkage Complete December 2011
1.6 Perform Tumor Linkage Defer to NAACCR Tumor Linkage Workgroup None
1.7 Perform Consolidation Defer to NAACCR Data Item Workgroup None
2.1 Perform Casefinding Audits Complete August 2009
2.2 Perform Quality Assurance / Quality Improvement Defer None
2.3 Perform External Linkage to Improve Data Defer to NAACCR Workgroup None
2.4 Conduct Death Clearance Defer to NAACCR Death Clearance Workgroup None
2.5 Conduct Active Follow-up Defer None
3.1 Perform Interstate Data Exchange Defer to NAACCR Confidentiality Committee None
4.1 Respond to Calls for Data Defer to Agency Publishing Call for Data None
5.1 Provide Data for Use by Others Defer None
5.2 Conduct Linkage for Research Defer None
5.3 Conduct Research and Analysis Defer None
5.4 Perform Rapid Case Ascertainment Defer to NAACCR IT Committee None
6.1 Conduct Education and Training No use case None
6.2 Handle Security No use case None