Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

Pubs
Affiliates Rebecca English, Lyle Carrera, Ashley Bologna, and Joe Alper

 

National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Board on Health Sciences Policy

Journal National Academies of Sciences, Engineering, and Medicine
Summary As part of the information-gathering phase of a study on ALS, the National Academies Board on Health Care Services and Board on Health Sciences Policy cohosted a virtual public workshop series in August and September 2023 to identify key actions for the public, private, and nonprofit sectors to undertake to make ALS a livable disease within a decade. Speakers explored topics including access to high-quality, evidence-based ALS care, the lived experience of ALS, and ALS research and therapeutic development. This publication summarizes the presentations and discussion of the workshop.
Link to paper Read the paper here!