Prevalence of amyotrophic lateral sclerosis — United States, 2012-2013

Affiliates Paul Mehta [1], Wendy Kaye [2], Leah Bryan [3], Theodore Larson [1], Timothy Copeland [1], Jennifer Wu [1], Oleg Muravov [1], Kevin Horton [1]


[1]Agency for Toxic Substances and Disease Registry, Division of Toxicology and Human Health Sciences
[2] McKing Consulting Corporation
[3] Carter Consulting, Inc.

Journal Morbidity and Mortality Weekly Report
Summary This study estimates the national ALS prevalence for 2012-2013, using data from the National ALS Registry. During 2012 and 2013, the Registry identified 14,713 and 15,908 persons, respectively, who met the surveillance case definition of ALS. The estimated ALS prevalence rate was 4.7 cases per 100,000 U.S. population for 2012 and 5.0 per 100,000 for 2013. Data from the registry are being used to better describe the epidemiology of ALS in the US. Moreover, the Registry is helping to facilitate new, innovative research in the US.
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