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ALS Registry Alert:

ALS Prevalence in the United States

Over 16,000 Americans were living with ALS in 2015, according to estimates found in the most recent report on data gathered by the National ALS Registry. ATSDR hopes that this and other findings from the report help scientists work toward creating a better future for persons living with this deadly disease. Learn more at

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Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig’s disease, is a progressive disease that attacks the nerve cells that control voluntary movement. The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. No one knows for sure what causes ALS and currently there is no cure. If you have the disease, consider joining the Registry and completing the brief risk-factor surveys because your answers could help scientists defeat ALS. Learn more about the National ALS Registry Video [MP4 – 30 MB]

Join Registry

Join the Registry

ALS research counts on you, join the National ALS Registry and help the fight against ALS.
National-ALS Registry Tutorial Video


Log in to the Registry

Log in to your account and take risk factor surveys and help researchers learn more about ALS.

ALS faq

For Persons with ALS

Learn more about ALS, clinical trials and studies, and locate the nearest ALS support group and clinic.
What is ALS?
Clinic Locator



Get the latest news from the Registry such as research notifications, new publications, and events.

National ALS Biorepository

National ALS Biorepository

Learn how you can participate and help researchers learn more about ALS.
Join the Biorepository


ALS Research

Learn how the Registry can help you with your ALS research.



Read the latest Registry supported ALS publications and reports.
ALS Reports


Registry Research

Learn how the Registry advances ALS Research.
Funded Research
Non-Funded Research

Contact Us

  • Agency for Toxic Substances and  Disease Registry
    4770 Buford Hwy NE ,  Atlanta, GA 30341
  • 800-232-4636
    TTY:(888) 232-6348
    Monday-Friday: 8am-8pm (Closed Holidays)