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Contents
Summary
Introduction
Overview of the Privacy Rule
The Privacy Rule and Public Health
The Privacy Rule and Public Health Research
The Privacy Rule and Other Laws
Online Resources
Acknowledgments
References
Appendix A
Appendix B
   
Privacy Rule Home
Guidance for Public Health
HIPAA Basic Facts
FAQs              
Privacy Rule Reading Room
Privacy Rule Links
Public Health Grand Rounds: HIPAA Privacy Rule

HIPAA Privacy Rule and Public Health

Guidance from CDC and the U.S. Department of Health and Human Services

MMWR, Volume 52, Early Release

 

References

  1. Gostin LO, Hodge JG Jr. Personal privacy and common goods: a framework. Minnesota Law Review 2002;86:1439--80.

     

  2. Health Insurance Portability and Accountability Act of 1996. Pub. L. No. 104-191, 110 Stat. 1936 (1996).
  3. Office for Civil Rights, Department of Health and Human Services. Title 45 of the Code of Federal Regulations Parts 160 and 164. Available at http://www.dhhs.gov/ocr/combinedregtext.pdf.
  4. Office for Civil Rights. OCR guidance explaining significant aspects of the Privacy Rule, 2002. Department of Health and Human Services. Available at http://www.hhs.gov/ocr/hipaa.
  5. Gostin, LO, Hodge JG Jr. Privacy Law Advisory Committee. Model state public health information privacy act, 1999. Available at http://www.publichealthlaw.net/Resources/ResourcesPDFs/modelprivact.pdf.
  6. Department of Health and Human Services. Protecting personal health information in research --- understanding the HIPAA Privacy Rule. Department of Health and Human Services. Washington, D.C.: 2003 (in press).
  7. Snider DE, Stroup DF. Defining research when it comes to public health. Public Health Rep 1997:112:29--32.
  8. CDC. Guidelines for defining public health research and public health nonresearch. Available at http://www.cdc.gov/od/ads/opspoll1.htm.
  9. Amoroso PJ, Middaugh JP. Research vs. public health practice: when does a study require IRB review? Prev Med 2003;36:250--3.
  10. Office for Protection from Research Risks, National Institutes of Health, Department of Health and Human Services. Public welfare: protection of human subjects, 2001. [45 CFR 46]. Available at http://ohrp.osophs.dhhs.gov/humansubjects/guidance/45cfr46.htm.
  11. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. Belmont report: ethical principles and guidelines for the protection of human subjects of research. Department of Health, Education and Welfare. Available at http://www.med.umich.edu/irbmed/ethics/belmont/BELMONTR.HTM.

 


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This page last reviewed April 18, 2003.

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