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Registries:
Immunization Information Systems
States/Cities/Territories
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| Recommended Core Data Set |
Contents
of this page:
What
is the core data set?
This core data
set was prepared in 1995 by the National Immunization
Program (NIP) in consultation with the Immunization
Grantee Working Group. It was reviewed by the National
Vaccine Advisory Committee (NVAC), and recommendations
of NVAC were incorporated. Contributions were also
made by public health representatives and private
providers.
The core data elements
fall into two categories: required and optional.
In addition, two functions for future consideration
are presented here. Required core data elements are
listed in bold print. These elements represent fundamental
attributes necessary for identifying individuals
and for describing immunization events. Required
elements are critical to the record exchange process.
Optional core data elements are less important for
record exchange. Some optional items (e.g., address)
may be useful only at the local level.
The purpose of the
core data set is to facilitate record exchange between
immunization information systems (IIS). It is imperative
that, at a minimum, each IIS include in its database
schema a method to receive and store all of the required
core data elements, even if the IIS does not routinely
collect the information. Thus, if an IIS receives
a record from one system and subsequently transfers
it to another, no required core data elements will
be lost in the process. It is strongly recommended
that IIS also collect data on all of the required
core data elements for their own patients.
Listing
of Core Data Set
(Required data elements are listed in bold
print.)
Patient/System/State
Identifiers
(Until a unique personal identifier can be established
on a national basis, multiple means of identification
must be used.)
| Patient
name: first, middle, last |
| Patient
alias name: first, middle, last |
|
(former
names for management of adoptions & name
changes) |
| Patient
address, phone number, birthing facility |
|
(these
variables should be locally defined) |
| Patient
Social Security number (SSN) |
| Patient
birth date |
| Patient
sex |
| Patient
race |
| Patient
primary language |
| Patient
birth order |
| Patient
birth registration number |
| Patient
birth State/country |
| Patient
Medicaid number |
| Mother's
name: first, middle, last, maiden |
| Mother's
SSN |
| Father's
name: first, middle, last |
Father's
SSN
|
Immunization
Event Identifiers
| Vaccine
type |
|
(Use
HL7-defined Table 0292 - Vaccines Administered
(code=CVX) found in Appendix 1. Note that
up-to-date cvx versions
of this table will be maintained on the NIP
website at <www.cdc.gov/nip/registry>.) |
| Vaccine
Manufacturer |
|
(Use
HL7-defined Table 0227 - Manufacturers of
vaccines (code=MVX) found in Appendix 1.
Note that up-to-date
mvx versions of this table will be maintained
on the NIP website at <www.cdc.gov/nip/registry>.) |
| Vaccine
dose number |
|
NOTE:
With a fully operating system, this variable
is not needed. However, in the real world,
and particularly during the initial startup
phase, many systems will be gathering partial
histories; therefore, to evaluate histories
properly, dose number becomes very important.
The ultimate goal would be to remove this variable
from the core data set, within the first 2
to 3 years of system operation. |
| Vaccine
expiration date |
| Vaccine
injection site |
| Vaccination
date |
| Vaccine
lot number |
Vaccine
provider
|
Functions for
Future Consideration
| Vaccine
adverse events monitoring |
|
[Such
events must be linkable to the existing national
adverse events surveillance system, with immunization
information systems having ability to electronically
report, without redundant keying of information
to the Vaccine Adverse Events Reporting System
(VAERS).] |
| Vaccine
preventable disease reporting |
|
[Such
disease events must be linkable to existing
local, state and national disease reporting
systems, with the immunization information
systems having ability to electronically report,
without redundant keying of information to
the appropriate disease reporting systems.] |
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| This
page last modified on September 7, 2005 |
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