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Registries: Immunization Information Systems

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Privacy, Confidentiality, Security, and Legislation

Topics on this page:


HIPAA (Health Insurance Portability and Accountability Act) of 1996


One Page Summary of the Law
This one page document contains a concise summary of the key provisions in HIPAA (P.L. 104-191), enacted on August 21, 1996.

Immunization Registries, HL7, and HIPAA  (printable .pdf version)

Disclosure to Public Health Under the HIPAA Privacy Rule (Updated 12/16/02) (still valid as of 3/31/05)

See also HIPAA Presentations (related to Privacy, Confidentiality, Security, & Legislation).  

Health Privacy Project - Privacy and confidentiality information for the consumer. (exit site)

Massachusetts Health Data Consortium - Useful HIPAA resources. (exit site)

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HIPAA Resources Outside of NIP


Office for Civil Rights

Health Information Privacy Office

CDC/DHHS Guidance, HIPAA Privacy Rule and Public Health (MMWR, April 11, 2003)

Public Health Privacy Presentation
This PowerPoint slide presentation addresses the implications of the HIPAA privacy rule on public health practice. The content has been approved by the Office for Civil Rights (OCR).

North American Association of Central Cancer Registries (NAACCR)  (exit site)
The NAACCR has developed materials to assist central cancer registries and cancer reporting entities in assuring compliance with HIPAA privacy regulations. These include a letter from NAACCR legal counsel and an in-depth, academic interpretation of the impact of the regulation on cancer incidence reporting to central cancer registries. Since immunization information systems (IIS) must address many of the same privacy issues as cancer registries, these documents may be an important resource for IIS projects.

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NIP Privacy and Confidentiality Resources

Survey of State Immunization Registry Legislation

Related Presentations, Publications and Reports

Community Immunization Registry Manual:

Accessibility Note: Any links to .pdf files or presentations can be made available in text-only format for screen-reader devices. If you need this assistance, please contact NIPINFO@cdc.gov.

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This page last modified on March 31, 2005

   

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