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Genetic susceptibility testing for beryllium: worker knowledge, beliefs, and attitudes.

Authors
Silver-K; Kukulka-G; Gorniewicz-J; Rayman-K; Sharp-R
Source
Am J Ind Med 2011 Jul; 54(7):521-532
NIOSHTIC No.
20039043
Abstract
Background: We sought to gain insight into workers' knowledge, beliefs, and attitudes on the subject of testing for genetic susceptibility to beryllium. Methods: Five focus groups were held with 30 current and former beryllium workers and nine family members. Audio recordings were transcribed and assessed by hierarchical coding using an inductive approach. Results: Some workers were unclear about the distinction between genotoxicity and heritability. A key finding is that they perceived the benefits of a positive test result to be related to enhanced autonomous decision-making. The major concern cited by participants was potential abuse of genetic information by employers. Complete financial separation of a prospective testing entity from the employer was seen as crucial. Conclusions: A window of opportunity exists to create regional partnerships for translational research on genetic susceptibility testing. Such partnerships would involve labor, management, public health scientists, primary care professionals, and other stakeholders. They would be critical to identifying testing strategies that maximize worker autonomy along with the public health advantages of genetic testing.
Keywords
Beryllium-compounds; Sensitivity-testing; Sensitization; Genes; Genetic-factors; Genetics; Workers; Behavior; Attitude; Group-behavior; Group-dynamics; Families; Genotoxicity; Heredity; Decision-making; Diagnostic-techniques; Diagnostic-tests; Employee-health; Health-care; Author Keywords: beryllium; genetic testing; Department of Energy; Los Alamos; OakRidge
Contact
Dr. Ken Silver, DSc, Department of Environmental Health, East Tennessee State University, P.O. Box 70682, Johnson City,TN 37614
CODEN
AJIMD8
CAS No.
7440-41-7
Publication Date
20110701
Document Type
Journal Article
Email Address
silver@etsu.edu
Funding Type
Construction; Cooperative Agreement
Fiscal Year
2011
NTIS Accession No.
NTIS Price
Identifying No.
Cooperative-Agreement-Number-U54-OH-008307
Issue of Publication
7
ISSN
0271-3586
Priority Area
Construction
Source Name
American Journal of Industrial Medicine
State
TN; OH; MD
Performing Organization
Center to Protect Workers' Rights
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