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World Trade Center Health Registry - a model for a nanomaterials exposure registry.

Authors
Cone-JE; Farfel-M
Source
J Occup Environ Med 2011 Jun; 53(6S):S48-S51
NIOSHTIC No.
20038919
Abstract
Objective: To describe the development of and some of the early results from the World Trade Center Health Registry (WTCHR). Is the WTCHR a model for a nanomaterials exposure registry? What lessons may be learned from the WTCHR? Methods: We describe the steps involved in creation of the WTCHR, from design through implementation. Results: The lessons learned from the WTCHR include thorough documentation of exposure early in the registry, using multimode surveys to maximize response rate, establishing an institutional home with sufficient resources for core as well as in-depth longitudinal and intervention studies, meeting with stakeholders regularly, making data accessible, and timely publication of findings, including wide dissemination of clinical guidelines. Conclusions: The process of creating and maintaining the WTCHR provides important lessons for the possible creation of a nanomaterials exposure registry.
Keywords
Nanotechnology; Models; Information-retrieval-systems; Information-processing; Information-systems; Data-processing; Demographic-characteristics; Exposure-assessment; Exposure-methods; Epidemiology; Employee-exposure; Environmental-exposure; Industrial-exposures; Occupational-exposure; Health-programs; Health-surveys; Surveillance-programs; Workplace-monitoring; Worker-health; Medical-monitoring
Contact
James E. Cone, MD, MPH, 42-09 28th Street, Long Island City, NY 11101
CODEN
JOEMFM
Publication Date
20110601
Document Type
Journal Article
Email Address
jcone@health.nyc.gov
Funding Type
Cooperative Agreement
Fiscal Year
2011
NTIS Accession No.
NTIS Price
Identifying No.
Cooperative-Agreement-Number-U50-OH-009739
ISSN
1076-2752
Source Name
Journal of Occupational and Environmental Medicine
State
NY; CO
Performing Organization
New York City Health/Mental Hygiene
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