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Registering multiple primary tumors in central cancer registries.

Authors
Howe-HL; Weinstein-R; Schult-T; Kohler-B; Hotes-J
Source
J Registry Manag 2003 Nov; 30(4):113-116
NIOSHTIC No.
20037693
Abstract
Coding rules for multiple primary tumors are complex and may diminish data reliability. The purpose of this study was to assess the reliability and utility of reports of multiple primary cancers among breast cancer cases. A NAACCR dataset for tumors diagnosed from 1994 - 1998 was used. Within each registry, all tumors were linked by patient identification number to determine the history of primary tumors for individuals. Once linked, patients with one breast cancer and another primary tumor were extracted. For these cases, data recorded for sex, race, ethnicity, and sequence number were compared among the multiple primary tumor reports. A full 10% of the sample was lost by the omission of 2 registries with pervasive errors in sequence number assignment, resulting in 327,537 records of invasive breast cancers. Of the 62,394 multiple primary patients, 24,273 had multiple primaries diagnosed during the 5 year interval. Of these, 32 tumors had an unknown sequence number; 1,953 patients had the first tumor incorrectly coded as a single primary; and 158 records were sequenced incorrectly. Inconsistencies were also found in race, ethnicity, and sex identification, but these were few. It was concluded that some data quality problems existed, however, routine quality assurance registry operations produced a reasonably accurate and useful patient-linked file.
Keywords
Analytical-processes; Breast-cancer; Cancer-rates; Epidemiology; Standards; Statistical-analysis; Statistical-quality-control; Tumors; Author Keywords: breast neoplasms; epidemiology; multiple primary tumors
Contact
Holly L. Howe, PhD, Executive Director, 2121 W White Oaks Dr, Suite C, Springfield, IL 62704
Publication Date
20031101
Document Type
Journal Article
Email Address
hhowe@naaccr.org
Funding Type
Grant
Fiscal Year
2004
NTIS Accession No.
NTIS Price
Identifying No.
Grant-Number-T42-OH-008434
Issue of Publication
4
ISSN
1945-6123
Source Name
Journal of Registry Management
State
MN
Performing Organization
University of Minnesota Twin Cities
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