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Recruiting African-American research participation in the Jackson Heart Study: methods, response rates, and sample description.

Authors
Fuqua-SR; Wyatt-SB; Andrew-ME; Sarpong-DF; Henderson-FR; Cunninghame-MF; Taylor-HA
Source
Ethn Dis 2005 Oct-Nov; 15(4)(Suppl 6):S6-18-S6-29
NIOSHTIC No.
20028982
Abstract
The sampling and recruitment methods, response rate, and cohort description for the all-African-American Jackson Heart Study (JHS) are detailed. Four subsamples of participants residing in the Jackson, Mississippi metropolitan statistical area (MSA) were included: random, volunteer, ARIC (continuing from Atherosclerosis Risk in Communities study), and family. A community-driven recruitment model was developed, and community representatives guided recruitment. 96% (n=5,302) of target enrollment was achieved with diversity in sex, education, and income. The JHS cohort provides a sample of African-American adults for longitudinal investigation. Cohort recruitment was challenging. The JHS experiences provide useful lessons for observational epidemiological studies recruiting African-American research participation. Co-participation of researchers and researched in study design and realistic evidence of community benefit were crucial to recruitment success.
Keywords
Demographic-characteristics; Racial-factors; Cardiovascular-system-disease; Cardiovascular-system-disorders; Cardiovascular-disease; Sampling; Sampling-methods; Sex-factors; Epidemiology
Contact
Sharon B. Wyatt, PhD, University of Mississippi Medical Center, 2500 North State Street, Jackson, MS 39216-4505
CODEN
ETDIEI
Publication Date
20051001
Document Type
Journal Article
Email Address
swyatt@son.umsmed.edu
Fiscal Year
2006
NTIS Accession No.
NTIS Price
Issue of Publication
4
ISSN
1049-510X
NIOSH Division
HELD
Source Name
Ethnicity and Disease
State
WV; MS
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