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The epidemiologic basis for the notification of subjects of cohort studies.

Authors
Schulte-PA
Source
Am J Epidemiol 1985 Mar; 121(3):351-361
NIOSHTIC No.
00193474
Abstract
The epidemiological basis for the notification of subjects of the positive results of occupational retrospective cohort mortality studies was examined. The assumptions underlying the issue of notification and the issues and criteria that should be considered prior to notification were addressed. Topics included: inherent limitations of cohort mortality studies; pertinency of study results to cohort members; risk to survivors; simultaneous inferences; weighing the decision to notify; proposed criteria for notification; methodologic integrity; adjusted statistical significance; and consideration of the magnitude of absolute lifetime risk. The author concludes that people have a fundamental right to know their own study results and hence their cohort's risks regardless of whether there are intervention possibilities. The establishment of explicit criteria for notification is critical to the orderly evaluation of research results as they pertain to the surviving subjects.
Keywords
Epidemiology; Occupational-exposure; Mortality-surveys; Risk-analysis; Health-surveys
CODEN
AJEPAS
Publication Date
19850301
Document Type
Journal Article
Fiscal Year
1985
NTIS Accession No.
NTIS Price
Issue of Publication
3
ISSN
0002-9262
NIOSH Division
DSHEFS
Source Name
American Journal of Epidemiology
State
OH
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