National Study of Long-Term Care Providers
Residential Care Community Frequently Asked Questions
NOTICE: The National Study of Long-Term Care Providers (NSLTCP) has completed data collection for the 2014 survey and is no longer accepting questionnaires. The anticipated start of data collection for the 2016 NSLTCP survey is May, 2016. Thank you for your participation in 2014 and we look forward to your continued support and participation in 2016, if your residential care community is sampled.
To learn more about participating in NSLTCP, please see below:
- What is the National Study of Long-Term Care Providers (NSLTCP)?
- Why is NSLTCP being conducted?
- How will NSLTCP data be collected?
- What types of information does the NSLTCP questionnaire collect?
- How long will it take to complete the NSLTCP questionnaire?
- How was my RCC selected?
- Should I complete a questionnaire if I participated in NSLTCP in 2012?
- Why is it important for my RCC to participate?
- What if my organization operates multiple RCCs?
- How do I know NSLTCP is a legitimate study?
- Is information about my RCC kept confidential?
- Does the HIPAA Privacy Rule allow my RCC to participate in this study?
- How will NSLTCP data be used?
- Whom can I contact if I have additional questions?
NSLTCP is a groundbreaking data collection effort sponsored by the National Center for Health Statistics (NCHS) within the Centers for Disease Control and Prevention (CDC). NSLTCP produces reliable national and state estimates, where possible, on the supply, use and characteristics of assisted living and similar residential care communities (RCCs), adult day services centers (ADSCs), nursing homes, home health agencies, and hospice agencies.
NCHS intends to conduct NSLTCP every two years in order to provide accurate, up-to-date data about RCCs and other long-term care services providers and the people they serve, and to monitor trends that are occurring in the long-term care services industry over time.
See the recently updated National Study of Long-Term Care Providers Factsheet [PDF - 159 KB] for more information.
The number of people in the United States needing long-term care services is increasing and RCCs are an important part of the long-term care services and supports continuum. NSLTCP provides an accurate picture of RCCs and other types of long-term care providers, the range of services they provide, and the characteristics of their residents. With these data, we will gain greater insight into how residential care communities meet the needs of the older population and younger disabled adults, and will also help to shape long-term care policies.
NSLTCP is composed of two types of data: survey data and administrative data.
NSLTCP data will be collected from RCC administrators/directors or designated staff through a questionnaire. RTI International is an independent, nonprofit research organization that is under contract with NCHS to collect the NSLTCP data. RTI International is a designated agent of NCHS. To view a copy of the 2014 NSLTCP RCC Questionnaire, click on RCC questionnaire [PDF - 169 KB].
Data for nursing homes, home health agencies, and hospices will not be collected using a survey questionnaire. Instead, administrative data collected by the Centers for Medicare & Medicaid Services (CMS) are used to produce information on these providers and the characteristics of their users.
The questionnaire asks about the characteristics of the RCC such as size, ownership, computerized capabilities, services provided, resident demographics and health and physical functioning, and numbers and types of staff among other things. To view a copy of the NSLTCP RCC Questionnaire, click on RCC questionnaire [PDF - 169 KB].
The questionnaire takes on average about 30 minutes to complete depending on the size of your RCC.
Your RCC was scientifically and randomly selected to represent not only your RCC, but also other comparably sized RCCs like yours across the United States. RCCs licensed to exclusively serve persons with mental illness, mental retardation, or intellectual/developmental disabilities are excluded. Nursing homes are excluded as well.
Yes. Your participation in this 2014 survey is important. NSLTCP is conducted every two years to obtain accurate, up-to-date data about residential care communities, other long-term care services providers, and the people they serve to monitor trends in the long-term care industry over time.
NCHS recognizes that RCCs are an important part of the long-term care services continuum in the United States. Participating in NSLTCP is a tremendous opportunity to make sure that the RCC sector is accurately represented in an on-going study to track trends in the long-term care services industry. Your participation will help to accurately represent other residential care communities similar to yours, and you cannot be replaced.
By participating, you will contribute to a more complete and accurate picture of the provision and use of RCCs and their services in this country and in your state. Your participation will result in more reliable information that can be used by policymakers, the long-term care industry, and researchers to make decisions and plan for future long-term care needs in the U.S. NSLTCP data will provide benchmarks, which will allow you to compare your RCC with all participating RCCs in the nation and, where possible, in your state. For an example, see our recent NSLTCP report, Long-Term Care Services in the United States: 2013 Overview [PDF - 2.9 MB]. By participating, you perform a valuable public service for your RCC, state, country and industry.
These associations encourage your participation in NSLTCP: the Center for Excellence in Assisted Living (CEAL), the American Seniors Housing Association (ASHA), the Assisted Living Federation of America (ALFA), LeadingAge (formerly aahsa), and the National Center for Assisted Living/American Health Care Association (NCAL/AHCA). Residential Care Communities Letter of Support [PDF- 91 KB].
If your organization operates multiple residential care communities, one or more of your residential care communities may be sampled for NSLTCP. We need a questionnaire completed for each sampled residential care community in your organization. Sampled residential care communities will receive a questionnaire by mail.
NCHS is the federal government’s principal health statistics agency. The initial authority for NCHS surveys is the National Health Survey Act (Public Law 84-652), which was enacted by Congress on July 3, 1956.
Because of its importance, NSLTCP has received support from national organizations representing RCCs. The Center for Excellence in Assisted Living (CEAL), the American Seniors Housing Association (ASHA), the Assisted Living Federation of America (ALFA), LeadingAge (formerly aahsa), and the National Center for Assisted Living/American Health Care Association (NCAL/AHCA) support NSLTCP and encourage your participation in NSLTCP. Residential Care Communities Letter of Support [PDF - 91 KB]
Yes. All information collected will be the property of NCHS and kept strictly confidential. The identity of specific RCCs will not be released in any manner, except to NCHS staff, contractors, and agents under designated agreements when required and with necessary controls. Results of the study will be published only in an aggregated manner that will not allow identification of any individual RCC or resident.
Our Strictly Confidential Brochure [PDF - 359 KB] gives more detail about confidentiality. For further information, please see the NCHS Confidentiality webpage or contact Eve Powell-Griner, NCHS Confidentiality Officer at 301 458-4257 or E-mail: EPowell-Griner@cdc.gov.
Yes. Since NSLTCP does not collect any protected health information (e.g., personal identifiers such as name, social security number, or birth date of RCC residents), the study is not subject to the Privacy Rule mandated by the Health Insurance Portability and Accountability Act (HIPAA). In other words, your RCC can participate in NSLTCP and still comply with the HIPAA Privacy Rule because the Privacy Rule does not apply to NSLTCP.
NSLTCP data will be used by the U.S. Congress and other public health policy makers, government agencies, the long-term care industry, academic institutions, professional associations, and health services researchers, as well as the media, to describe and understand the changes that occur in the delivery of long-term care services.
An overview report that will include survey data from the 2014 NSLTCP is anticipated for release in 2015. If you would like to be notified when the next overview report is available, we invite you to subscribe to the NCHS long-term care listserv. If interested, you can look at the our recent overview report, Long-Term Care Services in the United States: 2013 Overview [PDF - 2.9 MB].
You can call our toll-free number 1-877-225-4434 to talk with a study representative about the National Study of Long-Term Care Providers.
If you have any further questions or comments related to participating in this study, please contact:
National Center for Health Statistics
Chief, Long-Term Care Statistics Branch
3311 Toledo Road, Room 3419
Hyattsville, Maryland 20782
Long-Term Care Statistics Branch
National Center for Health Statistics
3311 Toledo Road
Hyattsville, MD 20782-2064
TTY: 1 (888) 232-6348
- Contact CDC–INFO