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National Study of Long-Term Care Providers

Adult Day Services Center
Frequently Asked Questions

To learn more about participating in NSLTCP, please see below:

 

What is the National Study of Long-Term Care Providers (NSLTCP)?


NSLTCP is a groundbreaking data collection effort sponsored by the National Center for Health Statistics (NCHS) within the Centers for Disease Control and Prevention (CDC). NSLTCP produces reliable national and state estimates, where possible, on the supply, use and characteristics of adult day services centers (ADSCs), assisted living and similar residential care communities (RCCs), nursing homes, home health agencies, and hospice agencies.

NCHS intends to conduct NSLTCP every two years in order to provide accurate, up-to-date data about ADSCs and other long-term care services providers and the people they serve, and to monitor trends that are occurring in the long-term care services industry over time.

See the recently updated National Study of Long-Term Care Providers Factsheet [PDF - 159 KB] for more information

 

Why is NSLTCP being conducted?


The number of people in the United States needing long-term care services is increasing and ADSCs are an important part of the long-term care services and supports continuum.   NSLTCP provides an accurate picture of ADSCs and other types of long-term care providers, the range of services they provide, and the characteristics of the people they serve.  With these data, we will gain greater insight into how ADSCs meet the needs of the older population and younger disabled adults, and will also help to shape long-term care services policies.

 

How will NSLTCP data be collected?


NSLTCP is composed of two types of data: survey data and administrative data.

NSLTCP data will be collected from ADSC directors or designated staff through a questionnaire. RTI International is an independent, nonprofit research organization that is under contract with NCHS to collect the NSLTCP data. RTI International is a designated agent of NCHS. To view a copy of the NSLTCP ADSC Questionnaire, click on ADSC questionnaire [PDF - 153 KB].

Data for nursing homes, home health agencies, and hospices will not be collected using a survey questionnaire. Instead, administrative data collected by the Centers for Medicare & Medicaid Services (CMS) are used to produce information on these providers and the characteristics of their users.

 

What types of information does the NSLTCP questionnaire collect?


The questionnaire asks about the characteristics of the ADSC such as size, ownership, computerized capabilities, services provided, participant demographics and health and physical functioning, and numbers and types of staff among other things.  To view a copy of the NSLTCP ADSC Questionnaire, click on ADSC questionnaire [PDF - 153 KB].

 

How long will it take to complete the NSLTCP questionnaire?


The questionnaire takes on average about 30 minutes to complete, depending on the size of your ADSC.


How was my ADSC selected?


Each adult day services center, including yours, is invited and strongly encouraged to participate in NSLTCP to help produce an accurate picture of adult day services centers in the United States and in your state.

 

Should I complete a questionnaire if I participated in NSLTCP 2012?


Yes. Your participation in this 2014 survey is important. NSLTCP is conducted every two years to obtain accurate, up-to-date data about adult day services centers, other long-term care services providers, and the people they serve to monitor trends in the long-term care industry over time.


Why is it important for my ADSC to participate?


NCHS recognizes that ADSCs are an important part of the long-term care services continuum in the United States.  Participating in NSLTCP is a tremendous opportunity to make sure that the ADSC sector is accurately represented in an on-going study to track trends in the long-term care services industry. Your participation will help to accurately represent other adult day services centers similar to yours, and you cannot be replaced.  

By participating, you will contribute to a more complete and accurate picture of the provision and use of ADSCs in this country and in your state. Your participation will also result in more reliable information that can be used by policymakers, the long-term care industry, and researchers to make decisions and plan for future long-term care needs in the U.S.   For an example, see our recent NSLTCP report, Long-Term Care Services in the United States: 2013 Overview [PDF - 2.9 MB]. By participating, you perform a valuable public service for your center, state, country and industry.

The National Adult Day Services Association (NADSA), LeadingAge (formerly aahsa), and the National Association of States United for Aging and Disabilities (NASUAD) encourage your participation in NSLTCP, Adult Day Services Centers Letter of Support [PDF - 75 KB].


What if my organization operates multiple ADSCs?


If your organization operates multiple ADSCs, we need a questionnaire completed for each ADSC in your organization.  NSLTCP will produce data about all centers in the U.S. 

 

How do I know NSLTCP is a legitimate study?


NCHS is the federal government’s principal health statistics agency. The initial authority for NCHS surveys is the National Health Survey Act (Public Law 84-652), which was enacted by Congress on July 3, 1956.

Because of the importance of NSLTCP, the National Adult Day Services Association (NADSA), LeadingAge (formerly aahsa), and the National Association of States United for Aging and Disabilities (NASUAD) support NSLTCP and encourage your participation in NSLTCP. Adult Day Services Centers Letter of Support [PDF - 75 KB].


Is information about my ADSC kept confidential?


Yes. All information collected will be the property of NCHS and kept strictly confidential. The identity of specific ADSCs will not be released in any manner, except to NCHS staff, contractors, and agents under designated agreements when required and with necessary controls. Results of the study will be published only in an aggregated manner that will not allow identification of any individual ADSC or participant.

Our Strictly Confidential Brochure [PDF - 359 KB] gives more detail about confidentiality. For further information, please see the NCHS Confidentiality webpage or contact Eve Powell-Griner, NCHS Confidentiality Officer at 301 458-4257 or E-mail: EPowell-Griner@cdc.gov.

Does the HIPAA Privacy Rule allow my ADSC to participate in NSLTCP?


Yes. Since NSLTCP does not collect any protected health information (e.g., personal identifiers such as name, social security number, or birth date of ADSC participants), the study is not subject to the Privacy Rule mandated by the Health Insurance Portability and Accountability Act (HIPAA). In other words, your center can participate in NSLTCP, as the Privacy Rule mandated by HIPAA does not apply to NSLTCP.

 
How will NSLTCP data be used?


NSLTCP data will be used by the U.S. Congress and other public health policy makers, government agencies, the long-term care industry, academic institutions, professional associations, and health services researchers, as well as the media, to describe and understand the changes that occur in the delivery of long-term care services.

An overview report that will include survey data from the 2014 NSLTCP is anticipated for release in 2015.  If you would like to be notified when the next overview report is available, we invite you to subscribe to the NCHS long-term care listserv.  If interested, you can look at the 2012 overview report, Long-Term Care Services in the United States: 2013 Overview [PDF - 2.9 MB].

 

Whom can I contact if I have additional questions?


You can call our toll-free number 1-877-225-4434 to talk with a study representative about the National Study of Long-Term Care Providers.

If you have any further questions or comments related to participating in this study, please contact:
Lauren Harris-Kojetin
National Center for Health Statistics
Chief, Long-Term Care Statistics Branch
3311 Toledo Road, Room 3419
Hyattsville, Maryland 20782
Phone: 301-458-4369
Fax: 301-458-4693
Email: LHarrisKojetin@cdc.gov

 

 

 

National Study of Long-Term Care Providers

Contact Us:
  • Long-Term Care Statistics Branch
    National Center for Health Statistics
    3311 Toledo Road
    Hyattsville, MD 20782
  • 1-800-232-4636
    (301) 458-4747
  • Contact CDC–INFO
USA.gov: The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Road Atlanta, GA 30329-4027, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC–INFO
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