Board of Scientific Counselors – Presentations
September 17-18, 2007
Back to September 2007 Presentations
National Death Index
PowerPoint Presentation [PDF – 361 KB]
Slide 1
National Death Index
Slide 2
Purpose of the NDI
- Identifies deceased study subjects
- Provides the following:
- dates of death
- states of death
- death certificate numbers
Notes: NDI was implemented in 1982. It is a central computerized index to death record information on file in the state vital statistics offices.
Assists researchers who are conducting prospective or retrospective studies to determine which study subjects may have died.
Slide 3
NDI PLUS
- Implemented in 1997
- Provides researchers with
- Underlying cause of death codes
- Multiple cause codes
Notes: Before NDI Plus most users purchased death certificates from the states (1982-1997)
Then in 1997, after about 8 years of negotiations with the states, the NDI was permitted to release cause of death codes
Provides International Classification of Diseases codes – ICD codes
ICD-9 1979-1998
ICD-10 1999 onward
Slide 4
Coverage
- All 50 states, District of Columbia, NYC, Puerto Rico, & Virgin Islands
- 61 million NDI records
- All deaths from 1979-2005
Notes:
- 2.5 million death records added each year
- 2003 deaths to be added December or January
- 2003 cause of death codes should be available by April 2005
Slide 5
Studies using the NDI
- Medical/surgical treatment effectiveness
- Clinical trials
- Post-marketing drug surveillance
- Cancer, AIDS & other disease registries
- General population studies:
- Census Bureau, NLMS (2.4 million records)
- American Cancer Society (1 million records)
- Dept. of Veterans Affairs (1.3 million records)
Slide 6
NDI users, 1982-2007*
Users served – 1,460
NDI searches performed – 4,248
User records submitted – 57 million
* As of September 6, 2007
Slide 7
NDI Usage (for the 12 months ending 8/31/07)
- New users served – 107
- Searches performed for new and repeat users – 293
- User records submitted – 4.3 million
NDI Plus searches – 275 Routine NDI searches – 18
Slide 8
12 NDI Advisers
- 4 from State vital statistics offices
- 3 from the NIH
- 3 from CDC
- 2 non-Federal researchers
Slide 9
State Vital Statistics Offices
- Richard Genovese
Director, Quality Assurance and Special Studies
Bureau of Vital Statistics
New York City Department of Health and Mental Hygiene - Robert Hayman, Ph.D.
Data Production Manager
Vital Statistics Administration
Maryland Department of Health and Mental Hygiene - Alvin Onaka, Ph.D.
State Registrar
Office of Health Status Monitoring
Hawaii Department of Health - Lou Saadi, Ph.D.
Director, Office of Health Care Information, CHES
Kansas State Department of Health and Environment
Slide 10
National Institutes of Health
- Michael Alavanja, Dr.P.H.
Captain, USPHS
Senior Investigator
Division of Cancer Epidemiology and Genetics
National Cancer Institute - Teri Manolio, M.D., MHS.
Director
Epidemiology and Biometry, DECA
National Heart, Lung and Blood Institute - Barry Portnoy, Ph.D.
Senior Advisor for Disease Prevention
Office of Disease Prevention
Office of the Director, NIH
Slide 11
Centers for Disease Control
- John Sestito, J.D., M.S. Assistant Director for Surveillance Division of Surveillance, Hazard Evaluations and Field Studies National Institute for Occupational Safety and Health
- Kathryn S. Porter, M.D., M.S.
Medical Officer
Division of Health Examination Statistics
National Center for Health Statistics - Christine Cox, M.A. Branch Chief, Special Projects Branch
NCHS Special Assistant for Record Linkage
Office of Analysis and Epidemiology
National Center for Health Statistics
Slide 12
Non-Federal Researchers
- Thomas M. Mack, M.D.
Professor
Keck School of Medicine
University of Southern California - Rob Schnatter, Dr.PH.
Senior Scientific Advisor
ExxonMobil Biomedical Sciences, Inc.
Slide 13
NDI Contact:
Robert Bilgrad
301 – 458 – 4101
RBilgrad@cdc.gov
