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Attachment D: Partnership for Integrated State Information Systems

This is a cooperative program between HRSA's MCH program and its Data Utilization and Enhancement (DUE) grantees (Arkansas, Florida, Hawaii, Kansas, Maine, Nevada, Rhode Island, Tennessee, and Utah). The purpose of this program, which lasts through FY 2002, is to improve coordination of maternal and child health-related data sets for planning, evaluation, and determining health status and health outcomes at state, substate, and national levels. Summaries of these state programs follow.

Arkansas: Links births and infant death certificates, inpatient hospital discharges, PRAMS, and the state birth defects registry in the Department of Health. Plans to bring in WIC and newborn screening programs, and Medicaid. Douglas Murray,; 501-661-2633.

Florida: Links the Delivery Cohort Multi-year Linking Project (birth, infant death, prenatal and infant screening, prenatal and infant service) with GIS.; 850-245-4010 or 4465.

Hawaii: Its Perinatal Data System establishes interactive data flow between the Department of Health and the four birthing facilities in the state and links newborn metabolic screening and early intervention files to vital record files, and with Medicaid/ QUEST, WIC, and hospital discharge files. (Based on New York system). Lorretta Fuddy;; 808-586-4122.

Kansas: Its enhanced Medicaid claims and birth record matching enables annual assessment of birth outcomes.; 785-296-8627.

Maine: See Its system includes hospital inpatient, outpatient, ambulatory, and diagnostic data, and will incorporate Medicaid, vital statistics, and other MCH data sets.; 207-624-8855.

Nevada: Its Information Network for Public Health Officials adopted Utah's Maternal Child Health Interactive Internet software to present birth, prenatal care, teen pregnancy, and fertility data; this network will add mortality, hospital discharge data, WIC, Medicaid, EMS, and trauma and cancer registries, with GIS functionality. Emil DeJan,; 775-684-4155.

Rhode Island: This program builds on KIDSNET (child health profiles) to include metabolic, endocrine, and hemoglobinopathy screening data. It links with the birth defects surveillance system under development, and the Rhode Island Hearing Assessment Program and audiologists. See also New England Regional Newborn Screening Program. Amy Zimmerman;; 401-222-5942.

Tennessee: Children's Information Tennessee (CIT) is an integrated data system that connects health-related data bases in the Departments of Children's Services, Education, Health, Human Services, and TennCare. This system will be enhanced with specific condition, intervention, treatment, and outcome data. This program proposes to conduct an epidemiologic study of children with asthma. Richard Urbano;; 615-741-5001.

Utah: This program's model software, Maternal and Child Health Information Internetquery Module (MatCHIIM), will be augmented by WIC, PRAM, Newborn Screening, and other data sets. The program will transfer technology with Missouri's MICA system, the other model system independently developed. Lois Haggard;; 801-538-9455.


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