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Information for Families

Family sitting on deckThis section of the website has tools and information about spina bifida for families.

Spina bifida affects the entire family. Meeting the complex needs of a person affected by spina bifida involves the whole family and can be challenging at times. However, finding resources, knowing what to expect, and planning for the future can help.

Facts about Spina Bifida

Information about spina bifida, including causes, types, and diagnosis.

Facts »


Information about some of the common complications and treatments.

Treatments »

Living with Spina Bifida

Information and resources on living with spina bifida at various ages, including physical health, independent living, and safety.

Living with Spina Bifida Homepage

Newborns and Infants

Toddlers and Preschoolers

School-Age Children

Adolescents and Teenagers

Young Adults

Find Support

It might be helpful to talk with parents who have a child with the same condition. To find others in the spina bifida community, click on the following links:

Free Materials

View, print, and order brochures and fact sheets about spina bifida.

Free materials »


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Contact Us:
  • Centers for Disease Control and Prevention

    National Center on Birth Defects and Developmental Disabilities

    Division of Birth Defects and Developmental Disabilities
    Divison of Human Development and Disability

    1600 Clifton Road
    MS E-87
    Atlanta, GA 30333
  • 800-CDC-INFO
    TTY: (888) 232-6348
  • Contact CDC-INFO The U.S. Government's Official Web PortalDepartment of Health and Human Services
Centers for Disease Control and Prevention   1600 Clifton Rd. Atlanta, GA 30333, USA
800-CDC-INFO (800-232-4636) TTY: (888) 232-6348 - Contact CDC-INFO